Welcome to Katherine, Steven and Theresa's Fundraising Page for Saratoga Springs!
The old adage, "If you have your health, you have everything," is only fully considered when illness interrupts your life. Seven years ago severe illness interrupted the life of my 10 year old son, and the lives of my entire family. Before Steven's illness I was surely a more private person, no need to share life's challenges, we all have difficulties at one time or another. But since Steven's illness I feel that I have no choice but to bring awareness to the particular horrors of Crohn's disease and Ulcerative Colitis. My hope is that awareness will bring the funds necessary to find a cure. If I don't tell the story, who will? As a mother, I am compelled to do something to help ensure a future for my child.
Seven and a half years ago Steven came home from school not feeling well. At first it seemed he had a stomach virus. Within three days he was bleeding. Within a week he was hospitalized and diagnosed with severe sudden onset Crohn's disease. Within three weeks he lost 30 lbs from his small frame despite having medical care. Nothing would stop the ravage. Steven had never had any symptoms or illness prior this. He almost died. Hearing the words "we're not sure he's going to live" whispered solemnly by doctors in a hospital hallway is a parents’ nightmare. Holding the hand of your 10 year old son while he is given Last Rites is numbing. I guess that's the only way to bear it. I could never come close to conveying what it's like to have a "code blue" called on your child. Standing 10 feet away watching the panic filled controlled chaos it brings, terror washed on doctors' faces. They all knew their roles and moved expertly around each other while his dad and I could do nothing but watch.
Months in the hospital, painful tests, procedures and blood draws, massive doses of caustic medications, chemotherapy, blood transfusions, etc., nothing stopped this disease. Three months after Steven’s very first symptoms, he had his first surgery. Three weeks after that, he had his entire colon, part of his small intestine and most of his rectum removed to save his life. At 10 years old Steven had a hole on his side with his small intestine sticking out and a permanent ostomy bag. Despite this terrifying life interruption, Steven dealt with this situation with faith, grace and humor.
Crohn's disease is a chronic auto immune disease where the body's immune system attacks and destroys its own digestive system causing inflammation, bleeding and ulcers from the mouth to the very "end." Crohn's causes severe debilitating diarrhea, and affects nutrition, can affect the liver, kidneys, eyes, muscles, skin and causes severe fatigue. And Steven has had it all. It's a very difficult disease. I know most diseases are. But there's something about being a kid or a young person and having “bathroom issues.”So as I have done over the past few years, I'm doing another half marathon and asking for sponsorship to help fund research for a cure for Crohn's and Ulcerative Colitis. When it's your child you have to. Please help if you are inclined and able. This year Steven and my daughter, Katherine, will be joining me in the half. Extra special!I, "we" are most grateful for your support.Theresa, Katherine and Steven too!
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Fundraising Honor Roll
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Melinda Spataro & Dolores Diaz
Patti Calderoni Stueber
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Abby and Haley
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