I am walking for the Crohn's and Colitis Foundation of America (CCFA) again this year in their Take Steps Walk. Thank you to everyone who has supported me in the past. I am 20 years old and a junior at St. Louis University studying Finance. My team name is "T Bones" because my bone density has been impacted by the disease. Take Steps for Crohn's and Colitis is CCFA's largest annual fundraiser. The walk in the Columbus area will take place on Saturday, June 24th at Dublin Coffman Park.CCFA has received a 4-star rating from Charity Navigator for the past 4 consecutive years.
This past year was a rough one for me. I had to take a semster off at school because I had complications with my Crohn's Disease that required surgery. These diseases have NO cure and impact every day life. Some of the symptoms include abdominal pain, anemia, vomitting, delayed growth, frequest restroom use, weight loss, fatigue and often times many missed days of school/work. It also means many medications and supplements, frequent doctors visits, hospitalizations, tube feedings and surgeries. 1 out of 200 people in the U.S. have Crohn's Disease or Ulcerative Colitis. We need to find a cure and I plan to keep walking until we do.
Every 6-8 weeks I go to the hospital to receive my treatment in the infusion clinic. This type of treament can only be given as an infusion through an I.V. Until a cure is found, new treatments are really needed. My hope is that as we continue to fundraise for research, new treatment options will become available for pediatric and adult patients.
I've had the honor of joining CCFA's National Council of College Leaders (NCCL). This council is comprised of college students across the country who collaborate to create different advocacy and fundraising projects. I just attended the 2017 Planning meeting in January.
Please consider sponsoring me by clicking on the link that says "donate to Tyler." ALL money raised goes to CCFA. They are funding research to find a cure and develop new treatments and providing educational resources for patients and families. If you prefer to mail a check, make it out to "CCFA" and mail it to our house and we will turn it in. Any amount is greatly appreciated and every single dollar gets us one step closer to finding a cure! All donations are also tax-deductible. Thank you so much!