Buffalo

Join the Buffalo Take Steps Walk on 9/29/18!

Add to calendar 9/29/18 9/29/18 America/New_York Buffalo Take Steps Walk Location Crohn's & Colitis eisrael@crohnscolitisfoundation.org

Location
Bowen Road Grove Shelter
Lancaster
NY
Schedule
1:00pm Check-in and Festival Start
2:30pm Walk Start
Staff Contact
Eric Israel
(585)967-0266
eisrael@crohnscolitisfoundation.org

Buffalo Take Steps

Connect with patients, families, healthcare providers, and organizations while fundraising for cures.
 

$29,214.00raised

$100,000.00goal

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  • More Walk Details
  • 1

    Join The Community

    By joining Take Steps, you will become part of the IBD community, who not only provide support to each other, but who, together, are actively raising money to support the Crohn’s & Colitis Foundation fund research into better treatments and ultimately cures for IBD. Join the Take Steps movement to raise funds for IBD and we can celebrate together at your local Take Steps event.

    Click to learn more about the Take Steps experience

  • Sponsors
  • Community Partners

    Our community partners have committed their time and money to support our mission to cure Crohn’s disease and ulcerative colitis. We want to extend a special thank you to those businesses and organizations who sponsor our event through monetary and in-kind donations, who provide volunteer support before, during, and after the event, and who offer matching campaigns to double or even triple the impact.

    See our 2018 partners and learn how you can get involved

  • Local Hero
  • Local Hero

    Mary Teresa Comerate

    My name is Mary Teresa Comerate and I am 15 years old. I am  grateful to be chosen as the 2018 honored hero along with being able to bring more awareness to IBD.


    My Crohn’s Journey began in 2009 before I started 1st grade. Over that summer it started with stomach aches and raised temperatures. The pain started happening more frequently and more severe.  I was treated for reflux with different medications but it wasn’t helping. I started losing weight and in November my labs showed blood in my stool, C-Diff and inflammation.  I went from 43 lbs. to 35 lbs.   After the medication for C-Diff was done and C-Diff gone, my symptoms were still there.  I was scheduled for a Colonoscopy and Endoscopy and a CT Scan. There was so much inflammation that they couldn’t complete the colonoscopy.  It was confirmed that I have Crohn’s Disease, just like my Mom.  I felt all alone and didn’t know anyone my age with Crohn’s.


    I started steroids and medications for Crohn’s Disease and began feeling better.  I gradually gained weight back and started growing. I was doing fairly well until 3rd grade when I was tired all the time and needed iron infusions.  I had an anaphylaxis reaction to the one treatment and received a different one that most people respond well to that consisted of 10 iron infusions.
    I had some minor flare ups and had a routine colonoscopy and endoscopy in 2013.  This time it was completed and my inflammation seemed under control.  It wasn’t until October 2015 the beginning of Seventh Grade that my symptoms came back, 3 months before my 13th birthday.


    In October 2015 I started back again with stomach pain and raised temperatures and I was exhausted.  I was getting my blood work done every week to monitor but nothing was indicating there was a problem.  By the beginning of November, ten days after my last labs, my levels skyrocketed. I was put on steroids and my medication dose increased.  By December I needed another round of iron infusions.


    In January 2016 I was rushed to the hospital for a bowel obstruction and hospitalized for a week.  I was taken off oral Azathioprine and put on Infliximab infusions instead and continued with Mesalamine . The obstruction resolved itself with steroids but my stomach aches continued.


    In March I was back in the emergency room with another obstruction and hospitalized for another week and again it resolved itself. The levels and frequency of infusions were adjusted to try and bring my Crohn’s under control.


    I couldn’t seem to stabilize and I started gradually losing weight and vomiting.  My stomach pain continued and I was missing school frequently or falling asleep in the nurse's office, I had no energy at all.
    It kept worsening and I was losing weight instead of gaining. I also  stopped growing. Once again, my labs didn’t show any indications that anything was wrong. I had repeated x-rays that showed no obstructions but during one of the x-rays they found a kidney stone.  Thought to believe this was causing the issues.  I saw a Urologist and a lithotripsy was scheduled to pulverize the stone in November of 2016.  


    I was scheduled for an MRI in the beginning of October to see if there was any other reason for my weight loss, pain and vomiting.  I was in severe pain and vomiting during the MRI so they couldn’t complete it. I was taken to the emergency room and admitted for 3 days.  They put a stent in my kidney as the images they were able to get showed my kidney enlarged.  I found out it is not uncommon to build kidney stones with Crohn’s.  Again nothing showed in my blood work indicating issues with Crohn’s or inflammation and I was released.


    Two weeks later at my infusion my labs were so off that they did them twice and the results were still the same. I also had some edema in my legs but not bad enough that they could keep me. The next day it was significantly worse and I was admitted to the hospital.  


    By October I was severely sick and weighed only 62 pounds.  I was hospitalized again for over 6 weeks. My body began shutting down because I was unable to absorb nutrients and digest food. It quickly became a life-threatening situation. During this time I also needed 3 blood transfusions.  A fistula was discovered which is rare for children. My fistula went between my colon and duodenum which is extremely rare.  It was also discovered that I am in the 5% of kids who do not have a textbook response to labs and medications adding another challenge and the reason why my labs show no immediate indication of issues. 


    The doctors and nurses quickly put me on a feeding tube for 2 months to receive the nutrients I needed.  Because of the unique location of my fistula, the feeding tube couldn’t work the way it was intended.  I was hospitalized again at the end of December for over 3 weeks. I was fed through a PICC line delivering the nutrients directly into my bloodstream. 


    In January 2017 I flew on Wings Flights of Hope to Children's Hospital of Philadelphia for a GI and Surgery consult.  My PICC line stayed in for 3 months and I was eating only ice chips, broth and hard candy to allow my intestines time to rest. There are over 200 documented types of Crohn’s Disease and I have one of the more aggressive types.


    In March I flew back to Philadelphia for my surgery and It was a success.  Today I’m doing better and continue to heal. I receive infusions every 5 weeks and it is helping to keep my disease under control. 

  • Volunteer
  • Volunteer

    Thousands of volunteers have helped the Crohn's & Colitis Foundation of America (CCFA) work toward our mission to find cures for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. Without our volunteers, we would not be able to provide a high level of support, education, research, and resources to our IBD community.

    Learn More

  • 10th Anniversary
  • A Decade of Difference

    Even before launching in 2008, patients and families from across the country have been walking to support the Crohn’s & Colitis Foundation. Since its launch in 2008, Take Steps has been a powerful force in connecting the patient community and accelerating crucial research into the causes of IBD. Because of the dedication and commitment from more than 300,000 walkers, Take Steps has raised more than $85 million for research efforts.

    Click to learn how we are celebrating our Decade of Difference.

  • Fundraising Clubs
  • Top Fundraising Club

    You make a difference with every dollar you raise, and the more you raise, the greater the impact. As a member of the Take Steps Fundraising Club, you will be recognized by the IBD community as someone who is willing to go the distance to see advancements in important research. How big will your impact be?

    Click to learn more about our fundraising levels and incentive items

    Join The Community

    By joining Take Steps, you will become part of the IBD community, who not only provide support to each other, but who, together, are actively raising money to support the Crohn’s & Colitis Foundation fund research into better treatments and ultimately cures for IBD. Join the Take Steps movement to raise funds for IBD and we can celebrate together at your local Take Steps event.

    Click to learn more about the Take Steps experience

    Thank you to our National Platinum Sponsor:

    Thank you to our local sponsors

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