Northern Virginia Take Steps for Crohn's & Colitis

Event Details

Location: Temporary Road Pavilion

Date: 10/19/2014
Check-in and Festival Start: 3:00 PM
Walk Start: 4:00 PM

Questions?

Walk Coordinator:
Michelle Plyem
mplyem@ccfa.org

Phone: 301-287-8494 ext. 3

Platinum Sponsor:


Goal = $27,500.00


Achieved = $23,717.00


Make an Event Donation

Team Honor Roll

Northern Virginia Take Steps for Crohn's & Colitis

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What a beautiful day for a walk! Over 200 walkers met on Sunday, October 19th at the Temporary Road Pavilion for a fabulous day of fun, hope and of course, cotton candy. 

Thanks to all of YOU (the participants, volunteers & sponsors) that have helped to make the 2014 Northern Virginia Take Steps for Crohn's and Colitis such a success. We are well on our way to reaching our goal of $27,500 for 2014! 

Thanks to all our sponsors and in-kind donors for helping us make the day a great success. 

Please note that we are still accepting donations both via check and online. If you have any checks, please send them to to our office, including a note of the individual or team to credit the donations. The address is:

11300 Rockville Pike, #1005
Rockville, MD 20852

There's still time to support Take Steps! 

Stop by Potbelly's in Reston Town Center (11919 Freedom Dr) on Sunday, October 30th from 4-7pm and 25% of your order will go to Take Steps and CCFA's mission! Be sure to invite your family and friends!

 

Local Honored Hero

Our Local Heroes are our inspiration and the reason why we Take Steps. 
Learn about Alex and Kaine below!

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Alex Pilloff
When he had just turned 10 years old, Alex's parents told him that he had been diagnosed with Crohn’s disease. He remembers it like it was yesterday. They sat him down, and they told him exactly what was going on. Alex didn’t know what to think. The worst part of all was that nobody understood what he was going through. He didn’t know anybody with Crohn’s, and at school, He never told anybody about it. In 2013, he had a bit of a personal coming out party. He was twelve by then, and he was slightly more comfortable with his condition. After writing many emails to his friends, family, and teachers, it was finally time for the walk.

He organized a team called Al’s Pals to join the Take Steps walk for the National Capital area. About 40 people walked with Alex while close to 50 friends and families donated online. By the end of the walk, his team raised almost $5,000 and, he would bet that every single person at the walk had lots of fun.

After the walk, Ihecould hardly describe how he felt. It was as if he had had a fight with Crohn’s, and by doing the walk, he had won. That is probably his main personal goal in doing service for the CCFA this year. He wants to help everybody who is struggling with Crohn’s win their personal battles with the disease.

He also attended Camp Oasis and had a great time meeting other kids with Crohn's Disease and ulcerative colitis. He wants to reunite with as many campers as possible at the Northern Viginia Take Steps Walk coming up on October 19th at the Temporary Road Pavilion in Reston. If you'd like to join in for the reunion, register for the Camp Oasis Team here. 
   

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Kaine Beaumont

Kaine is 13 years old in 8th at Floyd T. Binns Middle School in Culpeper, VA.

He was diagnosed in 2012 at age 11 with Crohns Disease. Kaine has always had digestive problems and was diagnosed earlier in life as lactose intolerant, lactose sensitive, and with stomach migraines. None were the correct diagnoses. In 2012 he was so sick he missed 34 days of full school days that isn't including coming in late or leaving early. He was put on steroid after steroid which would work until we tapered him off then he was sick again. After a colonoscopy and endonoscopy this is when they correctly diagnosed him with Crohn's Disease.

Kaine went though about six months of steroids, then he moved on to Azathoprine. Unfortunately that was not working quickly enough so in June of 2013 he started Remicade infusions. He is now on the way to remmison. He still gets Remicade infusions every 8 weeks and takes Azathoprine everyday.

Kaine was a very active child prior to the 2012 diagnosis. He played soccer spring and fall for six years and he wrestled for five years prior. He is not able to be as active these days but he enjoys reading, playing PlayStation, listening to music, drawing and his latest hobby is archery! He hopes in the future to will gain the energy back and get back into sports.

Both Alex and Kaine look forward to seeing you on Sunday, October 19th for the Northern Virgina Take Steps for Crohn's and Colitis at the Temporary Road Pavilion in Reston. If you haven't already registered, register now!