Hello Friends and Family,
Perhaps, many of you have never heard of ulcerative colitis. I hadn't either, until 2014. This was a difficult year for the soon-to-be Bensons. Max had gone through a series of medical tests, and we were awaiting the results. The anticipation of hearing news that can change your life was, well, it was hard. Even though we mentally prepared for the worst, there was always a bit of hope. When we sat down at the doctor's office, I looked at the doctor's face, and that hope quickly vanished away. I have never seen a more somber and worried look on a doctor's face before. I understand his expression now, because he gave us the news that we had feared most. Max had UC and a related life-threatening disease called PSC. He proceeded to tell us his recommendations, but I don't think I really heard anything. Leaving the office was terrifying as questions started flooding my mind. When we got home, the fear set in even more. That's when the tears started, and they just wouldn't stop. Finding out that the person I love most and was about to marry had UC was nothing short of heart breaking. I remember the physical pain in my heart as I tried to accept the diagnosis. There was nothing in the world like it, and I don't want anyone else to have to go through that.
In the two years since, we have started to accept the altered lifestyle, and we have adapted to feel like we have a mostly normal life. Patients with UC have an extremely high rate of developing colon cancer. So, each year, the cycle starts over. Once we forget about his diagnosis because the current treament has quelled the symptoms, it's time for another colonoscopy where the doctor prepares us for the worst. The yearly testing comes without fail, and it comes with the very humbling reality that cancer is a high possibility. This viscious cycle will continue for the rest of our lives.
Here's where CCFA comes in. I am extremely passionate about the hope for a cure, better treatment, prevention....something so that families don't ever have to go through what Max and I went through. In addition, I am extremely sure that there will be better treatment or cure in Max's lifetime. We can end that viscious cycle, and I'm not ready to sit back and wait! Let's do something!
I'm so ready to act, in fact, that I've decided to run a marathon to help raise awareness and money. Training for the marathon takes up hours of every single day in the year leading up to the marathon, just like people with IBD are forced to deal with their diseases every day.
Please consider donating to this worthy cause. No amount is too small, and your generosity really will change the world. Thank you so much!
About Crohn’s disease and ulcerative colitis
Crohn’s disease and ulcerative colitis are both major categories of Inflammatory Bowel Diseases (IBD). IBD affects an estimated 1.6 million Americans. These chronic diseases tend to run in families and they affect males and females equally. Crohn’s disease is a chronic inflammatory condition of the gastrointestinal tract and may affect any part from the mouth to the anus. Ulcerative colitis is a chronic inflammatory condition limited to the colon, otherwise known as the large intestine.
The Mission of the Crohn’s & Colitis Foundation of America is: To cure and prevent Crohn’s disease and ulcerative colitis through research, and to improve the quality of life of children and adults affected by these digestive diseases through education and support.
Make your own gift
Recognition of the participant making their own gift to support their efforts
Fundraising Honor Roll
Pat & Alex Benson
Kelly and James
Max and Katie!
Austin and Claire
Kate & Julian
Naomi + David
Mom and Larry
Ross and Liz Stockhausen
Ryan and Catherine
Michael Cho Pt2: Electric Boogaloo
Marissa and Miah
Avery and Chase
If you think this page contains objectionable content, please inform the system administrator.