Welcome to My Personal Page!
I have had 5 abdominal surgeries since being diagnosed with Ulcerative Colitis (UC) in February 2012. As many of you know from my last fundraising letter/webpage, I had my entire large intestine removed in August 2014. I had had no other choice as I ended up being bed bound in excruitiating pain and popping Morphine and Oxycodone pills like candy. I was already on a large dose of Prednisone, a double dose of the biologic medication called Humira, and azothiaprine. If you don't know much about these drugs, they all are considered high-risk medications that severely impair your immune system. I unfortunately, within the following weeks did have several post-op complications including a twisted bowel that required emergency surgery to fix, and an infected surgical site that resulted in a good size open wound in my abdomen. This was due to my having so much inflammation in my abdomen from the UC.
HOWEVER!!..after about 5-6 weeks of healing and recovery, I felt well enough to go back to work and resume my daily life activities. Because the diseased parts of my body were now removed, I experienced a surge of energy and vitality. I was able to quickly train for and run a half marathon on December 6, 2014 (see picture!)!! And this was with my new ostomy!
Fast forward to 6 months later, I had completed successful JPouch surgery (called in medical terms an ileal pouch-anal anastomosis (IPAA)) and no longer had my ostomy. This did not mean that my life with UC was over, but it greatly increased my quality of life to the point where I feel "normal" and healthy again.
My 5th surgery just happened to be this last December 2016. There was nothing wrong with the INSIDE of my intestines thankfully, but there was a lot of scar tissue (from the 4 previous surgeries) in my abdomen surrounding my instestines that cause a large abscess! This was a common complication with the type of surgeries I had had previously. Well if you know me at all, that did not stop me from getting back to working, going to school, and of course RUNNING! I did of course have to take time to recover first!
So here I am, determined to raise money for the Crohn's and Colitis Foundation of America (CCFA) in hopes to fund research to find a cure! If not a cure, then better treatment options and support for all Crohn's and UC patients. If you do not want to donate money, would you pray for me? I know many of my friends and family are worried about me undertaking yet ANOTHER long-distance running event. Please know that I have become very good at taking care of myself and not pushing myself beyond my limits! If I have to walk the race or even drop out to keep myself safe, so be it. I will ALWAYS continue to fundraise for a cure and for those patients who have not been as fortuante as me in their Crohn's/colitis illness journey.
Much LOVE to all of you and thank you for reading! Please pass this along to your friends and family!
About Crohn’s disease and ulcerative colitis
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