Milwaukee

Join the Milwaukee Take Steps for Crohn's & Colitis on 6/3/18!

Add to calendar 6/3/18 6/3/18 America/New_York Milwaukee Take Steps for Crohn's & Colitis Location Crohn's & Colitis ldelponte@crohnscolitisfoundation.org

Location
South Shore Park
Milwaukee
WI
Schedule
01:00 PM Check-in and Festival Start
03:00 PM Walk Start
Staff Contact
Leslie Del Ponte
(414) 475-5520
ldelponte@crohnscolitisfoundation.org

Milwaukee Take Steps

Connect with patients, families, healthcare providers, and organizations while fundraising for cures.

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  • More Walk Details
  • 1

    Join The Community

    By joining Take Steps, you will become part of the IBD community, who not only provide support to each other, but who, together, are actively raising money to support the Crohn’s & Colitis Foundation fund research into better treatments and ultimately cures for IBD. Join the Take Steps movement to raise funds for IBD and we can celebrate together at your local Take Steps event.

    Click to learn more about the Take Steps experience

  • Sponsors
  • Community Partners

    Our community partners have committed their time and money to support our mission to cure Crohn’s disease and ulcerative colitis. We want to extend a special thank you to those businesses and organizations who sponsor our event through monetary and in-kind donations, who provide volunteer support before, during, and after the event, and who offer matching campaigns to double or even triple the impact.

    See our 2018 partners and learn how you can get involved

  • Local Hero
  • Take Steps Honored Heroes represent the Crohn's disease & ulcerative colitis warriors living in our community. They share their story of life with IBD to raise awareness and inspire others to join the fight against digestive diseases.

     

    2018 Milwaukee Take Steps Pediatric Honored Hero:

    Ethan Hocevar

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    Hi, my name is Ethan. I am 11 years old and will be 12 in January. I like to play baseball, basketball, and do Jui Jitsu and downhill skiing. I live with my mom, dad, older sister Madalyn, and our 3 dogs. I am very excited to be named the pediatric Honored Hero for the Take Steps Milwaukee Walk for 2018.

    In August 2015 I started having swelling on my skin for no reason. We went to several doctors and no one had an answer. The swelling got to my lips and they took a sample and in December of 2015 I was diagnosed with Crohn’s Disease of the skin. This is a very rare form of Crohn's and not many people know of it. The Crohn’s Disease may or may not spread to my intestines. I am treated with the same medications and get Remicade infusions every 8 weeks and take some pills every day at home.

    Crohn’s Disease for me is taking a lot of medications, having episodes where I feel weak, dizzy, and I get pale. I have stomach aches at times and I worry a lot that the Crohn’s is spreading to my intestines. But I act and look just like a normal kid so you would never know.

     Crohn’s Disease has impacted my life in another way. My Grandpa Chamberlain had Crohn’s Disease pretty bad. He had a couple of surgeries and at times would be really sick from it. Unfortunately my Grandpa died August of 2016 from complications from Crohn’s. I miss him a lot. We had so much fun when we were together. We both got Remicade infusions and would send each other pictures of ourselves while we were getting them. He never forgot when my next appointment was.

     My family and I starting participating in the Take Steps walk after I was diagnosed. June of 2016 we walked in support of my Grandpa and I. In June 2017, we changed the name of our team to Team Ethan and Grandpa C to honor my Grandpa and to support me. This walk is a way for my family to help find a cure for something that has affected our lives. The walk is fun!  I got to throw a pie in my doctor’s face last year multiple times! Please considering donating or joining us for the Take Steps 2018 Milwaukee Walk. Hope to see you there!

     

    2018 Milwaukee Take Steps Adult Honored Hero:

    Brett Guiden

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    My name is Brett Guiden and I have Ulcerative Colitis.

     I was first diagnosed with Ulcerative Colitis when I was 16. This is the year most teenagers look forward to, with driving and being able to enjoy the new freedom that brings. I was lucky enough to become sick. Something was wrong when I was sick after every meal. My parents took me to multiple doctors, finally ending up at a Gastroenterologist. I had my first ever colonoscopy at 16, where most people don’t need to worry about them until 50. I finally had an answer, Ulcerative Colitis.

     In college I experienced about 2-3 flare-ups per year, but the medication would always work and I would be feeling better in no time. While my Colitis was always on my mind, it felt like I had it under control.

     Following graduation, I moved up to Wisconsin with my now-wife. After about a year up here I experienced another flare up. I grabbed my trusty medication, but this time it didn’t work. This time, it seemed like nothing worked. I saw multiple doctors, tried almost a dozen medications in varying combinations, but nothing seemed to work. I started spending more and more time in the bathroom. I couldn’t go anywhere or do anything without knowing a bathroom would be nearby. I had no energy and each day was a struggle to get through. After over a year of failed medications, we took a trip to the Mayo Clinic. While there, my elevated liver enzymes were brought up. I was diagnosed with non-alcoholic fatty liver disease at 17, and most doctors attributed my elevated enzymes to this. At the Mayo Clinic, it was suggested I get tested for something called Primary Sclerosing Cholangitis, or PSC, which I found out I do in fact have as well. PSC is a rare liver disease which affects the bile ducts of the liver and can result in the need for a liver transplant. Like UC, there is no cure for PSC and very few medications. I have been in the hospital twice now due to my PSC. Most people with PSC have UC, but it’s rarer the other way around.

     More medications, more uncertainty, and it seemed like things were only getting worse. I made an appointment with a top doctor at the University of Chicago, and talk began of having surgery to take my colon out.  Shortly before this appointment, it was discovered I had a Cdiff infection for the second time in my life.  Finally, treatment for this helped me start to feel better. The infection took almost a year to get rid of, which was frustrating and defeating at times. But at the moment my current medications are working and I am so grateful for this. However both Ulcerative Colitis and Primary Sclerosing Cholangitis are unpredictable and I never know when a flare up is right around the corner.

     This is my 3rd year as the leader of Brett’s Bowel Busters. It’s been over 10 years later since my initial diagnosis. I have yearly colonoscopies as well as frequent ERCPs for replacing stents in my liver ducts for my PSC. Every 4 weeks, I get an infusion for my UC as well. I am exhausted and still take multiple pills in the morning and night. But I am walking to find a cure for Ulcerative Colitis and Crohn's disease so hopefully one day, no one will have to deal with this disease.

     I could not be here if it was not for my Family. My mom and dad have been there since this has all began and have been a huge encouragement through all of this. My mom is my “Doctor Buddy” since the start, taking me to my appointments and procedures, even now still coming up to take me to procedures to help my wife out. My wife has been with me through so much of this, bending backwards to do anything she can to help me. She has stuck with me through every embarrassing moment of this disease. When I feel like a burden, she is always right by my side. I am very lucky to have such a great and loving family. I also want to thank all of my doctors along this journey, including my current gastroenterologist Dr. Perara, who I was able to pie the past 2 years at the Take Steps walk. She has been so wonderful about trying new medications when the normal medications aren’t working and stay up on research to know what new things to try. I am also thankful for such an awesome infusion group, who take care of me every month. Together I have a very strong and awesome support group. Thank you!

  • Volunteer
  • Volunteer

    Thousands of volunteers have helped the Crohn's & Colitis Foundation of America (CCFA) work toward our mission to find cures for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. Without our volunteers, we would not be able to provide a high level of support, education, research, and resources to our IBD community.

    Learn More

  • 10th Anniversary
  • A Decade of Difference

    Even before launching in 2008, patients and families from across the country have been walking to support the Crohn’s & Colitis Foundation. Since its launch in 2008, Take Steps has been a powerful force in connecting the patient community and accelerating crucial research into the causes of IBD. Because of the dedication and commitment from more than 300,000 walkers, Take Steps has raised more than $85 million for research efforts.

    Click to learn how we are celebrating our Decade of Difference.

  • Fundraising Clubs
  • Top Fundraising Club

    You make a difference with every dollar you raise, and the more you raise, the greater the impact. As a member of the Take Steps Fundraising Club, you will be recognized by the IBD community as someone who is willing to go the distance to see advancements in important research. How big will your impact be?

    Click to learn more about our fundraising levels and incentive items

    Join The Community

    By joining Take Steps, you will become part of the IBD community, who not only provide support to each other, but who, together, are actively raising money to support the Crohn’s & Colitis Foundation fund research into better treatments and ultimately cures for IBD. Join the Take Steps movement to raise funds for IBD and we can celebrate together at your local Take Steps event.

    Click to learn more about the Take Steps experience

    Thank you to our National Platinum Sponsor: