Milwaukee

Join the Milwaukee Take Steps for Crohn's & Colitis on 6/4/17!

Add to calendar 6/4/17 6/4/17 America/New_York Milwaukee Take Steps for Crohn's & Colitis Location Crohn's & Colitis ldelponte@ccfa.org

Location
South Shore Park
Milwaukee
WI
Schedule
1:00 Check-in and Festival Start

3:00 Walk Start 
Walk coordinator
Leslie Del Ponte
(414) 475-5520
ldelponte@ccfa.org

Milwaukee Take Steps

Connect with patients, families, healthcare providers, and organizations while fundraising for cures.
 

$13,985.00raised

$120,000.00goal

Search for a Walker

Cheer on our Featured Teams

shiggles.jpg

Team Shiggles

Henrys gut busters.jpg

Henry's Gut Busters

  • More Walk Details
  • 1

    More Walk Details

    Many patients feel they are alone in their struggle with IBD, not knowing how to explain IBD to others. Take Steps EMPOWERS patients and families while offering a safe and welcoming environment to CONNECT and INSPIRE one another. Walk day is filled with music, food, kid’s activities, local entertainment and most importantly, the company of hundreds of people who truly understand the impact of IBD.

    Have you seen the incentives for our 2017 walk? Find them HERE

    Are you looking for tools for hitting your goal? 

    Friends and family teams

    Corporate team tools

    Healthcare Provider tools

    We are so excited you will be joining us at this year’s Take Steps walk. If you have an immediate question or concern please don't hesitate to reach out to the walk manager- Leslie Del Ponte at 414-475-5520 or ldelponte@ccfa.org 

  • Sponsors
  • Local Sponsorship

    Local sponsorship opportunities enable companies to gain exposure throughout the community while supporting this important cause. Providing a cash or in-kind donation helps keep event costs down and results in more funds directed to research, patient education and services. There are several ways your company can support Take Steps.

      Thank you to our 2017 Take Steps Milwaukee Sponsors!

    GIA Logo milwaukee.JPG

     

    Sports Medicine and Orthopedic Center.gif

     

    Aurora Milwaukee Logo.jpg

     

    Froedtert_MCW.jpg

  • Local Hero
  • Take Steps Honored Heroes represent the Crohn's disease & ulcerative colitis warriors living in our community. They share their story of life with IBD to raise awareness and inspire others to join the fight against digestive diseases.

     

    2017 Milwaukee Take Steps Pediatric Honored Hero-Henry Clark

     

    Henry (2).jpg

    My name is Henry Clark and I am really excited to be CCFA’s 2017 Honored Hero for Take Steps Milwaukee.

    I am 11 years old, and I enjoy playing baseball, football and basketball. I also love spending time with my best friend, my twin brother Charlie, playing with my friends, and yes, I have Crohn’s disease.  

    My struggles started when I was about 5 years old. I was having horrible belly pain and was misdiagnosed for a couple of years before they confirmed I had Crohn's disease when I was 7. At first I was scared but then was relieved when they told me why I was having so much pain and always feeling tired and sick. The great nurses, doctors and staff at Children’s Hospital of Wisconsin have helped me manage and cope with this disease. 

    Living with Crohn's is like being on a roller coaster; there are a lot of ups and downs. As a kid with IBD, one of approximately 160,000 children affected by the disease in the United States, the hardest part of having this disease is that no one else can outwardly see it or truly understand what we go through every day. Some of the challenges include going through a lot of procedures, hundreds of doctors visits, missed school, play dates with my friends and sporting events where I really couldn't deal with the chronic pain. 

    I receive an infusion of Remicade every six weeks and take a lot of medications to control my Crohn’s. But I've also had the great opportunity to attend Camp Oasis for the past 2 years. This has given me an outlet to meet and talk to other people (kids, teens and grownups) who are dealing with this debilitating disease. I also have the support of family, friends, teachers, nurses and doctors who help me. 

    I also really look forward to the Take Steps Walk every year. It’s a great place to bring awareness of IBD, meet others with IBD and bring your friends while having a lot of fun. Let’s be real, who wouldn’t want to throw a pie at their GI?!!  I look forward to seeing you at the walk this year!

     

     

    2017 Milwaukee Take Steps Adult Honored Hero- Angie Sadowski

    image2.JPG

    My name is Angie Sadowski and I am the Toilet Paper Princess! I am 37 years old and married to the love of my life, Rick. We have two children, Wyatt (7 years old) and Callie (4 years old) and a spunky little dog named Sunny. I am a Literacy Coach at an elementary school in Racine, WI.

    I was diagnosed with Ulcerative Colitis on December 27, 2012. After being diagnosed, I began seeing a GI and was in an overwhelmed, confused state. I was very sick, and it only got worse. I was on prednisone, Lialda and then Apriso but none of them even came close to relieving the pain, bleeding and urgency, not to mention being diagnosed with C-Diff as well. After losing around 70 pounds in four months, I decided to get a second opinion. The new doctor was very concerned about my uncontrolled UC and had me admitted. I spent 30 days in the hospital on intestinal rest in order to recover and get my UC in control. During this time, I had a central line put in and was given TPN, albumin, lipids, iron, prednisone and various other medications in order for my body to begin recovery. Then, we tried Remicade and 6mp together. This combination brought me into remission for about a year, but my symptoms returned so we tried Entyvio. After about 6 months on Entyvio and 6mp, the symptoms still had not reduced and my GI and I decided it was time to go to Chicago to meet with a GI he highly recommended. My colonoscopies were still not showing any improvement after a few months of trying several other treatments and medications, so I decided to have a total colectomy and have my entire colon removed and have an ileostomy. I named my stoma “Rosie” because stomas look like little rosebuds, and rosebuds symbolize the beginning of something new and beautiful, like the new life that Rosie would be giving me. 

    Since surgery, my life has improved so much! I can go on road trips, go sledding with my kids, be at school, go to a movie, go to a Brewers game, go to a concert, go out for dinner…I have no major limitations! While surgery is not the answer for everyone, it certainly was the answer for me! I have not regretted the decision once, and find myself wondering why I tried so hard to avoid it for so long.

    Having UC has taught me many things about life, about friends and family and most importantly, about myself. Yes, I learned some tough life lessons because of my diagnosis, but I have also learned that I am stronger than I ever thought I could be. I have learned how to advocate for myself and for others and to be an inspiration. I have learned how to meditate. I have learned to laugh at myself and not take life so seriously all the time. I have learned that even though I am strong, it is okay to admit that I am sometimes weak and need help.

    I am very passionate about spreading awareness about Ulcerative Colitis and Crohn’s Disease. Because they are invisible diseases, many people don’t realize how many of us are struggling with IBD every day. The general public does not understand what the IBD community goes through because from the outside, we may not appear sick. It is not their fault; I didn’t fully understand what my dad was going through with his Ulcerative Colitis before I was diagnosed myself. I am also very passionate about patient advocacy. YOU are important. YOUR HEALTH is important. YOUR FEELINGS are important. If you do not feel as though you are being treated as such, you need to get a second opinion. If you feel any question in your mind about the treatment that you are getting, you need to seek the opinion of another professional. You owe it to yourself! Since I am so passionate about awareness and advocacy, I started my own blog called “Toilet Paper Princess: Tales of an Ulcerative Colitis Warrior” and have written a children’s book called The Toilet Paper Princess to help explain the disease to children being diagnosed, and children with parents, siblings or other relatives diagnosed with IBD.

    I call myself a warrior because every day there is the possibility that I could face a battle and I really feel like I was given UC to be a voice for other warriors! I am strong enough to forge ahead and make a difference for future patients. Awareness leads to funding for research, which leads to better treatments, which leads to a CURE one day!!!!! Let’s go Warriors!


  • Volunteer
  • Volunteer

    Thousands of volunteers have helped the Crohn's & Colitis Foundation of America (CCFA) work toward our mission to find cures for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. Without our volunteers, we would not be able to provide a high level of support, education, research, and resources to our IBD community.

    We have several volunteer opportunities available. If you are interested, please reach out to the Walk Manager- 414-475-5520 or ldelponte@ccfa.org

  • Top Fundraisers
  • MVPs

    Thank you to our top fundraisers and our top fundraising team. Are you a member of the Top Fundraising Club?

    Become a Take Steps Hope Giver by raising at least $3,000 or become a Cures Believer by being a top fundraising team in your local market. These top individuals and fundraising teams make a significant impact on the lives of patients by being at the forefront of fundraising. Our Hope Givers and Cures Believers receive special recognition on event day and will also receive:

    • Personalized fundraising support to help you achieve your goal
    • Recognition in local Take Steps newsletters, social media, and website
    • Invitation and recognition at post-walk Take Steps activities

    read more

  • Fundraising Clubs
  • Fundraising Clubs

    Top teams and individuals can go above and beyond to provide hope, inspire action, and find cures through fundraising efforts and outreach. These teams and individuals become members of our Top Fundraising Club.

    More Walk Details

    Many patients feel they are alone in their struggle with IBD, not knowing how to explain IBD to others. Take Steps EMPOWERS patients and families while offering a safe and welcoming environment to CONNECT and INSPIRE one another. Walk day is filled with music, food, kid’s activities, local entertainment and most importantly, the company of hundreds of people who truly understand the impact of IBD.

    Have you seen the incentives for our 2017 walk? Find them HERE

    Are you looking for tools for hitting your goal? 

    Friends and family teams

    Corporate team tools

    Healthcare Provider tools

    We are so excited you will be joining us at this year’s Take Steps walk. If you have an immediate question or concern please don't hesitate to reach out to the walk manager- Leslie Del Ponte at 414-475-5520 or ldelponte@ccfa.org 

    Thank you to our National Platinum Sponsor:

    Thank you to our local sponsors