Chattanooga

Join the Chattanooga Take Steps for Crohn's & Colitis on 10/21/2017!

Add to calendar 10/21/2017 10/21/2017 America/New_York Chattanooga Take Steps for Crohn's & Colitis Location Crohn's & Colitis mchianese@crohnscolitisfoundation.org

Location
Coolidge Park
Chattanooga
TN
Schedule
1 p.m. Check-in and Festival Start
2 p.m. Walk Start
Walk coordinator
Michelle Chianese
(615) 356-0444 x2
mchianese@crohnscolitisfoundation.org

Chattanooga Take Steps

Connect with patients, families, healthcare providers, and organizations while fundraising for cures.

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Chase Marshall

Chase-ing Away Ulcerative Colitis 

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    Your fundraising propels critical research toward cures and supports patient program for the 1.6 million Americans - that's 1 in 200 people - living with crohn's disease and ulcerative colitiss. Cures are within sight.

     

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    Join us Saturday, October 21 at Coolidge Park! 

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    TS Chatt Lookouts Kickoff 2017

  • Sponsors
  • sponsors

    Your fundraising propels critical research toward cures and supports patient program for the 1.6 million Americans - that's 1 in 200 people - living with crohn's disease and ulcerative colitiss. Cures are within sight.

    read more
  • Local Hero
  • local hero: Chase Marshall 

    Chase has always been the happy, cheery, lovable kid who had a hug and a word of encouragement for everyone. Straight A’s since the beginning of his school career. Loved to play outside with his cousins, do all the necessary things to take care of our animals on our farm and go fishing on the family lake. I started noticing in September 2013 at the age of 12, Chase started having severe constipation and fatigue. I thought the constipation was not enough fiber and the fatigue was due to not enough sleep. I amped up his fiber and he started going to bed earlier.  We had to go to his pediatrician several times and over and over we were told to use Miralax. The fatigue didn’t get any better either, he was falling asleep every time he got in the car as well as falling asleep during homework and studies, which he never did before. I knew something was horribly wrong when one night during dinner he started to cry in excruciating pain in the fetal position. The next day he started having diarrhea with blood in it.  Going back to the pediatrician, they said the constipation was tearing and causing a little blood and he should be fine in a couple of days. Again and again went back to the pediatrician with the same problems chronic fatigue and blood, I was told the same thing. Every time he ate he would cry in pain. I finally started taking pictures of the amount of blood he was losing in the toilet. We went back to the pediatrician and showed him the pictures and then he believed me- that was too much blood to pass for constipation. He ordered 17 vials of blood work. The very next day the pediatrician called me and asked me to check Chase out of school and come straight to his office to have an ultrasound done. He tried to explain all that was going on, all I heard was hepatitis. I got upset and he explained he had autoimmune hepatitis. I heard high AST/ALT/GGT. His pediatrician’s office had already made an appointment with a a few doctors at Children’s Hospital of Atlanta at Egleston. When we met the doctors they decided to do a liver biopsy and a colonoscopy. By this time his liver enzymes were in the 1,000’s. After the procedures they came to tell me “what we know right now is that Chase has severe ulcerative colitis. He will stay overnight and we will have the results of the liver biopsy in the morning.” I had no idea what UC was. As my son lay asleep that night I began googling like crazy and found and immediately joined the Crohn’s & Colitis Foundation to get all the education and help I could find. 

    The next morning about five doctors came into his room to give us the devastating news. What they suspected, he had UC with Autoimmune Hepatitis (AIH). He was put on Prednisone and Imuran. He finally became well enough to go back to school. With the help of Imuran and every once in a while having to go on Prednisone for a UC flare or an AIH issue he was doing pretty well.

    In the spring of 2016, right as Chase was gearing up to go into 8th grade at a new school that is designed for Math and Science, we noticed the tell-tale symptoms.  Within a week and a half, he went from 98 lbs. to 82 lbs. there again blood and tons of diarrhea. He was admitted into the hospital for 10 days. There he was given a picc line to help him get nourishments and he then was changed to Remicade. He managed to catch up with his classmates and come out of 8th grade with all A’s.

    Remicade worked all the way thru 8th and most of the 9th grade. We started noticing again the symptoms of UC Memorial day weekend 2015. High AST/ALT/GGT. They admitted him into the hospital and did another colonoscopy and a liver biopsy. To our surprise his colon looked really good, again to our surprise Chase was diagnosed with a rare disease called Primary Sclerosing Colangitis (PSC). Again, another disease we had no idea what it was. We soon found out it is a chronic bile duct disease that damages the bile ducts inside and outside the liver. With PSC, bile ducts get inflammation that leads to scarring and narrowing and eventually blocks the ducts. The only cure is a liver transplant. We have learned that people with UC are more likely to get PSC than a person who doesn’t have UC.

    In 2017 by the middle of the 9th grade Chase was experiencing excruciating fatigue again along with the occasional diarrhea. We took him to his GI doctor and gave him all the necessary blood tests, which all came back normal. As the school year went on he became more and more sick with debilitating fatigue and bloody diarrhea and was falling behind in his grades and missing days and days of school. His bloodwork was not matching with his symptoms. Finally, in April 2017 his GI doctor decided to do another colonoscopy and found his entire colon had pancolitis. He was admitted into the hospital and put on Entyvio. He gutted it out and went to school weeks after school was completed for the other students all along still having UC symptoms. Due to Chase missing so much school he will be homeschooled the remaining of his high school career. Finally, Memorial Day weekend 2017 he couldn’t take it any longer and was admitted again into the hospital for UC symptoms. The doctors did another colonoscopy and found that his colon had worse pancolitis that in April. They decided to put him on Humira but with his history we had to prepare him with the possibility that he would have to have his colon removed. Maybe not know but it could happen if he developed antibodies to Humira like he did Remicade. So far he’s taking all the information in stride. We are praying that Humira with a low dose of Prednisone will keep his UC in control for a very long time.

    We participated in the Take Steps last year with his GI doctor Kugathasean in Atlanta and Chase raised over $500. Our goal this year is to raise over $2,000. 

  • Volunteer
  • Volunteer

    Thousands of volunteers have helped the Crohn's & Colitis Foundation of America (CCFA) work toward our mission to find cures for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. Without our volunteers, we would not be able to provide a high level of support, education, research, and resources to our IBD community.

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  • Top Fundraisers
  • Top Fundraisers

    Thank you to our top fundraisers and our top fundraising team.

    Our 2016 MVPs: 

    Greg Smith

    Kenny Smith  

     

    Are you a member of the Top Fundraising Club?

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  • Fundraising Clubs
  • Fundraising Clubs

    Top teams and individuals can go above and beyond to provide hope, inspire action, and find cures through fundraising efforts and outreach. These teams and individuals become members of our Top Fundraising Club.

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    more walk details

    Your fundraising propels critical research toward cures and supports patient program for the 1.6 million Americans - that's 1 in 200 people - living with crohn's disease and ulcerative colitiss. Cures are within sight.

     

    read more

     

     

    Join us Saturday, October 21 at Coolidge Park! 

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    TS Chatt Lookouts Kickoff 2017

    Thank you to our National Platinum Sponsor: