Rhode Island, Take Steps to Find a Cure!


The Crohn’s & Colitis Take Steps Walk is one of CCFA’s largest events committed to finding cures for digestive diseases. The Rhode Island walk offers an incredible day for family, friends and the community to come together in celebration of all their hard work and dedication to our mission. Our community consists of patients, loved ones, friends and supporters that empower and inspire each other to fight these diseases. Connect with your community to fundraise for cures and celebrate taking steps closer to cures!

Over 300 community members came together in 2015 from the Rhode Island community to raise over $49,000. Because of this community, CCFA funded over 192 research projects totaling $28.4 million, a 21% year-over-year increase. Also, because of your support, almost 600,000 participants were served in education and support programs overall in 2015,a 105% YOY increase.




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Thanks to your great feedback the Rhode Island Take Steps walk has a new place to call home. Please share the new date and location with your friends & family. 

Roger Williams Park

Sunday, October 16th

9AM Festival, 10AM Walk

Meet your honorees, Sue and Ruby

Sue Dacey

This year's Adult Honoree Sue Dacey is on a mission to bring support to her community and help find cures.  Meet Sue, a resident of Warwick who was diagnosed with Crohn's Disease 25 years ago after a visit to the doctor because of intense stomach pain.  Her doctor told her that the pain was in her head and tried to prescribe anxiety medication to treat her pain.  Sue didn't accept this diagnosis and went for a second opinion to a gastroenterolgist.  After more scopes than she can remember and drinking gallons of the awful prep drink, Sue was diagnosed with Crohn's Disease.  At 26 years old, she had never heard of Crohn's Disease and began treatment.  Today, she continues to receive Remicade treatments but has hope that one day we will find a cure.  She believes that events like the walk brings awareness and raises funds for much needed advancements in treatment and research.  To learn more about Sue, visit her page.  


RubyMeet Ruby, this year's Pediatric Honoree who is on a mission to never give up and inspire others to do the same.  Ruby story is as follows:

"I am almost eleven years old. A few years ago, I got sick and went to the hospital. After I went home, I thought my illness was gone. But last year, I returned to the hospital. I got sicker and sicker, and after my 4th week there, the medical staff decided to give me a subtotal colectomy surgery. They took out my colon and now I have an Ileostomy.

The skin around my bag has had a ton of rashes, but my advice to anyone who has a bag is: have humor; it makes having IBD seem lighter. Lately, I've been ice skating and swimming a lot. I've also been discouraged a few times, but I didn't give up."

To learn more about Ruby and her team, visit her page


Congratulations to our top teams as of 9/14/16 at 10:30AM

1. Team Star led by Jonathan Sigman-$3,909

2. Beth's Crohnies led by Beth Gabriel-$3,385

3. Becca's Bunch led by Sharon Terzian-$2,815

There is still plenty of time to fundraise for walk, if you need help getting your plan started, contact Stacey Kokoros Kenneally at 781-626-0651 or skokoroskenneally@ccfa.org


matching gift


Matching-gifts are an easy way to significantly increase the impact of your contributions. Many companies around the country donate funds to match gifts made by their employees to non-profit organizations. A dollar-for-dollar match is common, and some companies will even contribute up to two or three dollars for each dollar an employee gives.  Some even match gifts made by retirees and spouses!

So what are you waiting for? Ask your company today if it offers a matching-gift program, and request a matching-gift form. Send us the completed and signed form via mail, email or fax and we will do the rest.

Register to Walk!6 Steps to put the fun in FUNdraising: 

Step 1: Set a realistic and meaningful goal for your team.
There is no cost to register and no fundraising minimum. It is up to you to set a personally meaningful and significant goal for you and your team. Communicate that goal to your team members and work together to achieve it dividing the goal among each other.

Step 2: Add your personal touch and share your story.
Compose a passionate and individualized letter about why you are walking and how people can support your fundraising efforts and update your personal fudraising page.

Step 3: It's more fun with friends!
Ask your friends, neighbors, family members and co-workers to join your team and help you to spread awareness and reach your team’s fundraising goal through their contacts.

Step 4: Raise Money.
The national fundraising average per person is $250.  Set a High Aim goal.  Ask the businesses you frequent, or even better, ask your own company! Lead by example, by making the first donation your own!

Step 5: Create Excitement!
Design a team t-shirt or a unique team identifier, share information on social media, and create a team fundraiser that gets your community involved! Need ideas? Ask your walk team.

Step 6: Celebrate Your Team’s Success!
Attend the walk. Take a team photo. Plan a post walk celebration!

Please mail offline donations to:

CCFA New England

ATTN: Take Steps Rhode Island

72 River Park Street, Suite 202

Needham, MA 02494

For more information, contact:

Stacey, Walk Manager

skokoros@ccfa.org or 781-626-0651

Danielle Thibault, National Walk Manager

dthibault@ccfa.org or 646-431-0609