Eastern Long Island Take Steps to Find a Cure!
The Crohn’s & Colitis Take Steps Walk is one of CCFA’s largest events committed to finding cures for digestive diseases. Our walks offer an incredible day for family, friends and the community to come together in celebration of all their hard work and dedication to our mission.
Our community consists of patients, loved ones, friends and supporters that empower and inspire each other to fight these diseases. Each year we connect with our communities as we fundraise for cures and celebrate our hard work together in supporting our patients.
To date, Take Steps has raised more than $60 million to fund mission-critical research and patient support programs. More than 80 cents of each dollar raised goes directly to funding this mission. Find a walk in your local community and join thousands of others Taking Steps for cures.
Meet Your 2016 Medical Honoree - Dr. Ramona Rajapakse
CCFA and the Long Island Chapter are pleased to introduce Ramona Rajapakse, MD, FRCP(UK) as your Medical Honoree.
Dr. Ramona Rajapakse is a specialist in Inflammatory Bowel Disease, the Director of the adult IBD service at Stony Brook and the Co-Director of the IBD center. She obtained her medical degree from the Royal College of Surgeons in Dublin, Ireland and Fellowship of the Royal College of Physicians in the UK (FRCP) before arriving in the USA . She completed a residency in Internal Medicine and a Fellowship in Gastroenterology with a special interest in IBD at Lenox Hill Hospital/NYU in New York City and took on a faculty position at Stony Brook University Hospital in 2000 with the intention of setting up an IBD service. Since moving to Stony Brook she has built the adult IBD service into one that provides not only clinical expertise but state of the art treatments both in and out of trials, endoscopic procedures specific to IBD and education for all of Suffolk county and Long Island. She is involved in numerous clinical trials, has published and lectured widely on IBD, and has been a supporter of the CCFA in its mission for over 15 years.
By partnering with CCFA and being a part of Take Steps Dr. Rajapakse, along with her colleague Dr. Monzur and the entire GI Group of Stony Brook Medicine are making a commitment to the Long Island IBD community (an estimated 40,000 of the children and adults live here on Long Island) that nothing is more important than finding better, more effective treatments, and ultimately, cures. We invite you to join Dr. Rajapakse on October 23rd by joining her walk team.
Meet Your 2016 Shining Star - Victoria Mangiapane
Determined. Self-motivated. Victorious. Words that have been used to describe Victoria Mangiapane, the 2016 Eastern LI Take Steps Shining Star, since she was a toddler. Diagnosed with Crohn's disease at age 12, after a year of weight loss and increasing fatigue, Victoria, now 17 years old, has never let this debilitating disease stop her from pursuing her goals and dreams. While sleeping, Victoria suffered a catstrophic seizure and other complications from malnutrition. It was discovered that her duodenum had strictured,a rare occurrence, and food was unable to pass from her now enlarged stomach. Thanks to her amazing gastroenterologist, Dr. James Markowitz and the staff at Cohen's Children Medical Center, Victoria and her family were teamed up with two surgeons who would change her life forever...Dr. Stephen Dolgin and Dr. Jose Prince. Through a 10 1/2 hour surgery, Victoria received a duodenal strictoplasty through laporoscopy and made medical history. She was the first pediatric case to receive this experimental procedure. "A medical miracle that will open doors," praised her exhausted but rejoiceful family.
Crohn's is a part of her and her mom's life and both are verbal about it. It will not stop Victoria from achieving her dreams and leading a full and happy life. Victoria believes that life is to be lived to every persons full potential and with a positive mind, that potential is limitless. Please support her, Team Mangiapane and all the teams this October at the Eastern Long Island Take Steps Walk in Stony Brook. Together we can find a cure! Read Victoria's full story - click here
Walk Day Details:
Date: Sunday, October 23, 2016
Location: Stony Brook University's Student Activity Plaza
Address: 100 Nicolls Road, Stony Brook, NY 11790
Directions: Click here for directions!
FREE PARKING: is available at Stony Brook University Click here for directions to parking at SBU
Time: Registration begins at 11:30 am | Walk starts at 1:00 pm | Snacks and drinks available | Activities open 11:30 am - 2:30 pm
The Take Steps Walk will take place rain or shine, so please dress accordingly!
- Awareness Builder- Individuals who raise $100 or more
- Inspiration Creator- Individuals who raise $500 or more
- Hope Giver- Individuals who raise $1,000 or more
- Cures Believer Team- Teams that raise $10,000 or more
- Click Here to See Our Flyer with More Details on our MVP Program
- Click Here to Customize your Fundraising Page
- Click Here to view our Team Captain Guide
Leading the Pack...
Take Steps spreads awareness about IBD throughout our community while raising crucial funds to fuel the mission-critical research, education and support services of CCFA. As we continue to strive to surpass our local fundraising goal of $125,000 we want to recognize those who are leading our efforts through your team and individual fundraising.
Congratulations to our Top 5 Fundraising Teams: (updated 9/18/16)
CONGRATULATIONS TO OUR HOPE GIVERS OF 2016! (updated 9/18/16)
Who will be our top fundraising teams of 2016?! Keep up the amazing work, there is still time to get in the leader boards!
FUNDRAISING TIP/MATCHING GIFTS: Have you been matched?
Matching-gifts are an easy way to significantly increase the impact of your contributions. Many companies around the country donate funds to match gifts made by their employees to non-profit organizations. A dollar-for-dollar match is common, and some companies will even contribute up to two or three dollars for each dollar an employee gives. Some even match gifts made by retirees and spouses!
So what are you waiting for? Ask your company today if it offers a matching-gift program, and request a matching-gift form. Send us the completed and signed form via mail, email or fax and we will do the rest.
Here are a few proven tips to help you have a rewarding and successful walk experience with your team!
Step 1: Set a realistic and meaningful goal for your team.
There is no cost to register and no fundraising minimum. It is up to you to set a personally meaningful and significant goal for you and your team. Communicate that goal to your team members and work together to achieve it dividing the goal among each other.
Step 2: Add your personal touch and share your story.
Compose a passionate and individualized letter about why you are walking and how people can support your fundraising efforts and update your personal fudraising page.
Step 3: It's more fun with friends!
Ask your friends, neighbors, family members and co-workers to join your team and help you to spread awareness and reach your team’s fundraising goal through their contacts.
Step 4: Raise Money.
The national fundraising average per person is $250. Set a High Aim goal. Ask the businesses you frequent, or even better, ask your own company! Lead by example, by making the first donation your own!
Step 5: Create Excitement!
Design a team t-shirt or a unique team identifier, share information on social media, and create a team fundraiser that gets your community involved! Need ideas? Ask your walk team.
Step 6: Celebrate Your Team’s Success!
Attend the walk. Take a team photo. Plan a post walk celebration!
Please mail all Take Steps offline donations to:
CCFA Long Island Chapter - Take Steps
Attention: Suzanne Beck
585 Stewart Avenue, Ste 304
Garden City, NY 11530
Include your TEAM NAME and/or PARTICIPANT NAME
*Checks should be made payable to CCFA
Get and Stay Connected Locally!