REGISTRATION IS STILL OPEN
IF YOU REGISTER OR RECEIVE DONATIONS AFTER 3:00 PM ON FRIDAY, 10/21, YOU MUST BRING RECEIPTS FOR YOUR REGISTRATION, AS WELL AS, ANY ONLINE DONATIONS MADE TO YOUR PAGE TO THE REGISTRATION TABLE AT THE WALK IN ORDER TO PARTICIPATE OR EARN YOUR INCENTIVE PRIZES.
THANK YOU FOR YOUR SUPPORT.
WE LOOK FORWARD TO A SUCCESSFUL AND FUN WALK ON SUNDAY!
DAY OF WALK-INS ARE ALWAYS WELCOMED. WALK DETAILS BELOW
The 5th Annual Eastern Long Island Take Steps Walk
We Need Your Help to Reach Goal!
We are 59% to our $100,000 goal at $58,581
SO COME ON EASTERN LONG ISLAND! WE GOT THIS!!!!
We can reach GOAL! Start your FUNDRAISING! Register your FRIENDS!
TODAY, we will be lacing up our sneakers, and "taking steps for Crohn's & Colitis" at Stony Brook University, rain or shine – forecast looks great, sunny and low 60's!
Don't be shy about it. In the final days before we connect at Eastern Long Island Take Steps for Crohn's & Colitis help us finish strong by posting to Facebook and sending emails. Much is still unknown about IBD and more research is needed to find cures. Share your reason for walking and ASK for donations.
This Sunday, October 23, 2016
Where do we Walk for a Cure?
- Location: Stony Brook University's Student Activity Plaza
- Address: 100 Nicolls Road, Stony Brook, NY 1179
- Directions: Click here for directions!
- FREE PARKING: is available at Stony Brook University Click here for directions to parking at SBU
When do we Walk for A Cure?
- SUNDAY, OCTOBER 23, 2016
- Registration Opens: 11:30 am
- Program: 12:40 pm
- Ribbon Cutting and Walk: 1:00 pm
- Activities open 11:30 am - 2:30 pm
FIRST STOP: Registration located inside the student activity center
Check-in opens at 11:30AM. You can drop off donations of cash/checks you’ve collected, make additional donations by cash/check/credit card, register additional participants to your team, and receive your qualifying incentives (t-shirt, bandana, and lunch cooler).
PLEASE NOTE: if you have Team Members that have not yet registered online, they will need to complete an onsite registration form and sign an event participant waiver! Encourage them to pre-register so their day of experience is quicker and easier!
Opening Ceremony: 12:40 PM
Brian Cohen will be our Master of Ceremony for our 5th Annual Eastern Long Island Take Steps Walk. Anna Lubitz will start the program off by singing the National Anthem to officially kick off the walk. Don’t miss the words of inspiration from our 2016 Medical Honoree, Dr. Ramona Rajapakse, as well as, our 2016 Shining Star, Victoria Mangiapane! Read honorees full stories: click here
Patient Recognition Ceremony: We will be hosting a patient recognition ceremony as part of the opening ceremony. Patients, if you are comfortable, we invite you to the stage. Patients are invited to line up in front of the stage facing the audience with other patients who share a similar date of diagnosis range.
Here is a visual from the Gold Coast Walk
Walk! 1:00 PM
- Walk Route is approximately 2.8 miles
- Dogs are not permitted
- Wheelchair and stroller accessible
- There are bathrooms located inside the student activity center
- Before you leave for the walk, count all your donations and fill out your walker envelope completely on BOTH sides. Place donations in the envelope and seal. If you have matching gift forms please turn them in along with your donations.
- All checks should be made payable to CCFA and should have your team name in the memo portion of every check to be credited correctly.
- Once at the school, proceed to the Student Activity Center to check-in and receive your event bracelet. (please note: REGISTRATION is inside the SAC building)
- If you have additional donations to turn in, additional walker envelopes will be available onsite.
- EVERYONE MUST CHECK-IN!!!!
- All registered walkers raising a $100 or more attached to their name are eligible to receive a Take Steps Walk T-shirt.
Walk Day Activities
- Kids Corral: Balloon art, carnival games, cotton candy, hula-hoops, jump ropes, spin art, tattoos and much more!
- Mission experience tent: Learn what CCFA is up to and has to offer you, sign the Wall of Hope, Receive a patient identifier free backpack
- Education: Make sure to take a stroll thru the Inflatable Colon, provided by Boston Scientific. During your walk thru the inflatable colon, you will see images along with explanations of
- Healthy colon tissue
- Colorectal polyps
- Various stages of colon cancer
- Crohn’s and Colitis
- Team Photo Station: Make your own banner! then please make sure to pose for our photographer
- Special Appearance by Wolfie the Seawolf, Stony Brook University's fun-loving mascot.
- Warm ups lead by Pure Barre of East Setauket
- You won't want to miss the Stony Brook Marching Band and the Stony Brook Dance Team
- Hair Extension by Cactus Salons –show your support with a blue and/or orange hair feather. They will have color feather hair extensions for only $10.00 of which $5.00 of each extension will be donated to CCFA!
- Kona Ice – purchase a premium tropical shaved ice, you add the flavor and they will donate proceeds to Take Steps. **Kona Ice is dairy-free, gluten-free and we even offer flavors that are sugar-free and dye-free!
- Refreshments: We have so many wonderful in-kind sponsors this year and they have donated yummy goodness: cookies, chips, Gatorade, bagels provide by Panera Bread, water, and other snack items. (If you have a dietary concern or just want to bring your own refreshment, you are welcome to do so)
The Most Valuable Participant Program was created to recognize top teams and individuals going above and beyond to provide hope, inspire action, and find cures through fundraising efforts and outreach.
- Awareness Builder- Individuals who raise $100 or more
- Inspiration Creator- Individuals who raise $500 or more
- Hope Giver- Individuals who raise $1,000 or more
- Cures Believer Team- Teams that raise $10,000 or more
- Click Here to See Our Flyer with More Details on our MVP Program
- Click Here to Customize your Fundraising Page
- Click Here to view our Team Captain Guide
Leading the Pack...
Take Steps spreads awareness about IBD throughout our community while raising crucial funds to fuel the mission-critical research, education and support services of CCFA. As we continue to strive to surpass our local fundraising goal of $125,000 we want to recognize those who are leading our efforts through your team and individual fundraising.
Congratulations to our Top 5 Fundraising Teams: (updated 10/21/16)
- Team Mangiapane
- Stony Brook Medicine
- Commack Cares
- J.T. Shulman & Co. Take Steps toward a Cure
- The Ciganek Team
CONGRATULATIONS TO OUR HOPE GIVERS OF 2016! (updated 10/21/16)
- Victoria Mangiapane
- Ramona Rajapakse
- Debbie Fields
- Michael Ciganek
- Jeanette Voulo
- Jesse Patriss
- Steven Mandel
- John Mangiapane
Who will be our top fundraising teams of 2016?! Keep up the amazing work, there is still time to get on the leader boards!
Meet Your 2016 Medical Honoree - Dr. Ramona Rajapakse
CCFA and the Long Island Chapter are pleased to introduce Ramona Rajapakse, MD, FRCP(UK) as your Medical Honoree.
Dr. Ramona Rajapakse is a specialist in Inflammatory Bowel Disease, the Director of the adult IBD service at Stony Brook and the Co-Director of the IBD center. She obtained her medical degree from the Royal College of Surgeons in Dublin, Ireland and Fellowship of the Royal College of Physicians in the UK (FRCP) before arriving in the USA . She completed a residency in Internal Medicine and a Fellowship in Gastroenterology with a special interest in IBD at Lenox Hill Hospital/NYU in New York City and took on a faculty position at Stony Brook University Hospital in 2000 with the intention of setting up an IBD service. Since moving to Stony Brook she has built the adult IBD service into one that provides not only clinical expertise but state of the art treatments both in and out of trials, endoscopic procedures specific to IBD and education for all of Suffolk county and Long Island. She is involved in numerous clinical trials, has published and lectured widely on IBD, and has been a supporter of the CCFA in its mission for over 15 years.
By partnering with CCFA and being a part of Take Steps Dr. Rajapakse, along with her colleague Dr. Monzur and the entire GI Group of Stony Brook Medicine are making a commitment to the Long Island IBD community (an estimated 40,000 of the children and adults live here on Long Island) that nothing is more important than finding better, more effective treatments, and ultimately, cures. We invite you to join Dr. Rajapakse on October 23rd by joining her walk team.
Meet Your 2016 Shining Star - Victoria Mangiapane
Determined. Self-motivated. Victorious. Words that have been used to describe Victoria Mangiapane, the 2016 Eastern LI Take Steps Shining Star, since she was a toddler. Diagnosed with Crohn's disease at age 12, after a year of weight loss and increasing fatigue, Victoria, now 17 years old, has never let this debilitating disease stop her from pursuing her goals and dreams. While sleeping, Victoria suffered a catstrophic seizure and other complications from malnutrition. It was discovered that her duodenum had strictured,a rare occurrence, and food was unable to pass from her now enlarged stomach. Thanks to her amazing gastroenterologist, Dr. James Markowitz and the staff at Cohen's Children Medical Center, Victoria and her family were teamed up with two surgeons who would change her life forever...Dr. Stephen Dolgin and Dr. Jose Prince. Through a 10 1/2 hour surgery, Victoria received a duodenal strictoplasty through laporoscopy and made medical history. She was the first pediatric case to receive this experimental procedure. "A medical miracle that will open doors," praised her exhausted but rejoiceful family.
Crohn's is a part of her and her mom's life and both are verbal about it. It will not stop Victoria from achieving her dreams and leading a full and happy life. Victoria believes that life is to be lived to every persons full potential and with a positive mind, that potential is limitless. Please support her, Team Mangiapane and all the teams this October at the Eastern Long Island Take Steps Walk in Stony Brook. Together we can find a cure! Read Victoria's full story - click here
Walk Day Details:
Date: Sunday, October 23, 2016
Location: Stony Brook University's Student Activity Plaza
Address: 100 Nicolls Road, Stony Brook, NY 11790
Directions: Click here for directions!
FREE PARKING: is available at Stony Brook University Click here for directions to parking at SBU
Time: Registration begins at 11:30 am | Walk starts at 1:00 pm | Snacks and drinks available | Activities open 11:30 am - 2:30 pm
The Take Steps Walk will take place rain or shine, so please dress accordingly!
FUNDRAISING TIP/MATCHING GIFTS: Have you been matched?
Matching-gifts are an easy way to significantly increase the impact of your contributions. Many companies around the country donate funds to match gifts made by their employees to non-profit organizations. A dollar-for-dollar match is common, and some companies will even contribute up to two or three dollars for each dollar an employee gives. Some even match gifts made by retirees and spouses!
So what are you waiting for? Ask your company today if it offers a matching-gift program, and request a matching-gift form. Send us the completed and signed form via mail, email or fax and we will do the rest.
Here are a few proven tips to help you have a rewarding and successful walk experience with your team!
Step 1: Set a realistic and meaningful goal for your team.
There is no cost to register and no fundraising minimum. It is up to you to set a personally meaningful and significant goal for you and your team. Communicate that goal to your team members and work together to achieve it dividing the goal among each other.
Step 2: Add your personal touch and share your story.
Compose a passionate and individualized letter about why you are walking and how people can support your fundraising efforts and update your personal fudraising page.
Step 3: It's more fun with friends!
Ask your friends, neighbors, family members and co-workers to join your team and help you to spread awareness and reach your team’s fundraising goal through their contacts.
Step 4: Raise Money.
The national fundraising average per person is $250. Set a High Aim goal. Ask the businesses you frequent, or even better, ask your own company! Lead by example, by making the first donation your own!
Step 5: Create Excitement!
Design a team t-shirt or a unique team identifier, share information on social media, and create a team fundraiser that gets your community involved! Need ideas? Ask your walk team.
Step 6: Celebrate Your Team’s Success!
Attend the walk. Take a team photo. Plan a post walk celebration!
Please mail all Take Steps offline donations to:
CCFA Long Island Chapter - Take Steps
Attention: Suzanne Beck
585 Stewart Avenue, Ste 304
Garden City, NY 11530
Include your TEAM NAME and/or PARTICIPANT NAME
*Checks should be made payable to CCFA
Get and Stay Connected Locally!