Phoenix Take Steps for Crohn's & Colitis

Event Details

Location: Enchanted Island at Encanto Park

Date: 3/29/14
Check-in and Festival Start: 3:00 PM
Walk Start: 4:00 PM

Questions?

Walk Coordinator:
Megan Livengood
mlivengood@ccfa.org

Phone: 602-734-1392

Platinum Sponsor:


Goal = $120,000.00


Achieved = $102,066.63


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Team Honor Roll
Top Participants

Phoenix Take Steps for Crohn's & Colitis

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-The Globe Foundation-

-Dr. Michael Shapiro-

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Meet our Honored Hero Shifali Keyser:

 


My journey of fighting Crohn's started almost 3 years ago with a call to 911. My Mom and Dad tell me that I was taken to Phoenix Children's hospital via air-evac but it's all a blur to me. I had lost consciousness from massive bleeding. After 4 weeks in the hospital, many tests, blood transfusions and a major surgery later, I was diagnosed with Crohn's. Life changed in a heart beat.
I am so thankful to God for saving my life and the wonderful team at PCH led by my Doctor, Dr. Gary Silber. They have taken really good care of me for the last 3 years.

Since the diagnoses, I have had another major surgery in the form of a resection. Recovery from each surgery was extremely difficult and painful. For the first 2 years I received Remicade infusions every 6-8 weeks along with other medications and then in early 2013, I started to have an adverse reaction to Remicade. After further conversations with my Doctor, I started the Humira injections. My mom gives me the Humira treatments every other week. The injection is extremely painful but I know that I must endure the pain in order to remain healthy. In the past 3 years, I have been hospitalized many times with flare ups, reaction to medication and/or infections. The flare ups are extremely painful and my Mom and Dad rush me to the hospital so I can get relief with pain management as nothing else works. I call "Dilaudid" my savior drug as that is the only thing that makes the pain go away when I am in flare up mode. I have left the hospital with black and blue arms from countless needle pokes. Once they tried to hook an IV to my foot because there was no room on my arm.

Because of Crohn's, I have missed many days of school, special events, including my eighth grade graduation. Living with this horrific disease is stressful and overwhelming. There are days that I have no energy and feel like I cannot move. This disease has impacted so many areas of my life.

Even though, I have had a terrible time with this disease and continue to manage and fight it every day, I am thankful. I am thankful and grateful of the support system of my loving family, friends and Dr. Silber. They are with me every step of the way. They help me stay focused and positive and continue to fight this disease.
Thank you for taking the time to read my story. Now, let's find a cure!

 

Phoenix, Take Steps to Find Cures

Register to Walk!

Our Take Steps walks offer a wonderful day for family, friends and the community to celebrate all of the efforts that have been put forth in raising funds towards our mission.  Our walk events are filled with live music, food, kids’ entertainment, educational materials, and, of course, wonderful exposure for our corporate partners.

Take Steps for Crohn’s & colitis is a family friendly community walk dedicated to raising awareness and mission-critical funds for cures for digestive diseases.  In the past five years alone, we succeeded in bringing together over 100,000 people and raised close to $40 million to help further CCFA’s mission. 

80 cents of every dollar raised goes towards breakthrough research, public and professional education, and patient support services in communities across the nation.

Register today. Join thousands of others in the fight against digestive diseases.