Crohn's & Colitis Foundation of America
View email online
Crohn's & Colitis Foundation of America
Letter from Rick Geswell, CCFA President

Right now, dedicated CCFA volunteers are gathering in Washington, D.C. preparing to meet with legislators tomorrow for our ninth national advocacy conference, IBD Day on the Hill. I'm particularly excited about what we have planned this year – our dedicated advocates will be asking legislators to join our newly formed Crohn's & Colitis Caucus, created to promote the need for expanded IBD research and accessibility to disability and health insurance.

You too can communicate with your legislators about the importance of IBD awareness. Please join our online Advocacy Network to receive periodic action alerts and other ways to get involved with our advocacy work!
How Youth Advocate Ally Bain Discovered Her Voice

Since being diagnosed at age 11 with Crohn's disease, Ally Bain has worked hard to raise awareness for IBD.

Among her many achievements, Ally helped to get the Restroom Access Act, or "Ally’s Law," passed in Illinois in 2005. Now, as a college student and a member of CCFA's National Youth Leadership Council, she is a part of CCFA's IBD Day on the Hill tomorrow.

"Youth can lead the country in a culture of empowerment and a movement for positive change," Ally says. "By becoming advocates, young people are able to discover their voice."
New Congressional Caucus Promotes IBD Awareness

Congressmen Ander Crenshaw (R-FL) and Jesse L. Jackson, Jr. (D-IL) have launched the Congressional Crohn's and Colitis Caucus and are inviting all Congressional colleagues to become members. This new caucus will work to promote awareness of Crohn's disease and ulcerative colitis, the need for expanded research at the National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC), and the importance of accessible insurance and disability for patients with IBD.

"As a parent of a child with Crohn's and colitis, I have witnessed first-hand the often debilitating effects of this disease," says Congressman Crenshaw.
Q&A on CCFA's Advocacy Program

As CCFA's Director of Advocacy and Youth, Amy Friedman oversees our national advocacy program and the National Youth Leadership Council. The goal of the Foundation's advocacy work is to empower people with Crohn's disease and ulcerative colitis to make their voices heard on Capitol Hill.

"We want patients to talk about their struggles with the disease," Amy says. "It is important for them to share their stories, because we have legislators in Congress who want to listen and it will make a difference."

Read the full Q&A about IBD advocacy!
MAY 2011 ISSUE
Support CCFA Advocacy for Happier Lives
The number of IBD patients keeps growing, but we still don't have a cure. Your support helps CCFA advocate for awareness and expanded IBD research.
Join Our Advocacy Network Today
Are you looking for a fast and easy way to take action on IBD issues? Join hundreds of people on CCFA's advocacy network today! We'll send you occasional advocacy alerts when urgent action is needed so you can make a difference for those living with IBD.
Be Heard
CCFA's Take Steps walks are a great way to make your voice be heard, find support from others, and get moving! Sign up for your local walk today at www.cctakesteps.org!
Donate Now YouTube Facebook Twitter Forward to a friend
Need Help? | Team Challenge | Take Steps | Chapter Events

Crohn's & Colitis Foundation of America | www.ccfa.org
888.MY.GUT.PAIN (888.694.8872)


Unsubscribe from receiving email, or change your email preferences.

powered by CONVIO
nonprofit software