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CCFA News

E-newsletter of the Northeast Ohio Chapter


Ask the Experts Program 

 

We had nearly 90 participants at this year's Ask the Experts program in Independence.  Many thanks to our attendees and speakers!  Also, thanks to our program sponsors, including Abbott Pharmaceuticals, the Cleveland Clinic and University Hospitals of Cleveland Digestive Health Institute.  Watch for upcoming programs in Akron and Youngstown later this year.  

Take Steps Kick Off Party 

Sunday, April 17th - 5:00-7:00 pm
Parma Freeway Lanes
12859 Brookpark Road, Cleveland OH 44130

Come kick off our 2011 Take Steps Walk season at Freeway Lanes in Parma!  The evening will include FREE shoe rental and unlimited bowling, pizza, chicken tenders, fries, pop and coffee.

Please RSVP to Katie by April 15th by calling 216-524-7700 or ktricarichi@ccfa.org.  Not signed up for Take Steps yet? Click here to register your team:

Click Here for Cleveland

Click Here for Akron  

Team Challenge

Team Challenge is pleased to announce that we are headed to the Napa Wine Country Half Marathon on July 17th!  Join Mike McCready, Pearl Jam lead guitarist, Crohn's patient, and Team Challenge participant to cross the finish line in Napa for a cure!

Team Challenge Vegas:  Rock the Strip at Night!  For the first time ever, Team Challenge Vegas will be run at night!  When you join the Team for this half marathon, you'll see the Las Vegas Strip as it was meant to be seen, in all its glitz and glamour.  As you run or walk past world-famous attractions on this flat, fast course, you'll be accompanied by cheer squads and rock bands to get you motivated and moving!  Check out the web site: Las_Vegas_at_Night.jpg

www.ccteamchallenge.org/vegasatnight 

Look Who's Going to Camp!

Camp Oasis, a week long overnight camp is exclusively for children with Crohn's and ulcerative colitis.  Northeast Ohio youth will attend camp in Fenton, Michigan from July 10th to July 16th.  Camp Oasis offers a life changing experience for kids with IBD.  Campers return home with new confidence and interact more successfully with their peers, teachers and others in their community.  As one former camper explains, "Camp Oasis means friends, fun, forgetting about everything that normally sets you apart from everyone else, learning more about your disease, feeling confident and knowing that everyone knows what you are going through."  This year we have received a record number of interested families, forcing us to close registration to new campers and start a waiting list.  Camp Oasis is truly an amazing experience and we are looking forward to another great year! 

"30 in 60": A Baseball Road Trip to Raise Funds and Awareness

Twenty-two year old Jason Schwab, a sophomore at Baldwin Wallace College, is embarking on a nationwide tour of Major League Baseball stadiums to raise funds for the Northeast Ohio Chapter of the Crohn's and Colitis Foundation.  Schwab calls his road trip "30 in 60," aiming to attend at least one Major League baseball game in every stadium, with the entire trip taking 60 days.

"When life gets you down to your very worst, and my worst was 78lbs and 5"4', it's still possible to rebound and accomplish anything you want to do.  I want to spread awareness about IBD while raising funds to find a cure,"  That's the message that Jason, diagnosed at age 15, is trying to send through his road trip.  When asked what motivated him, Schwab said, "I want to send a message to everyone with a chronic illness that you shouldn't let anything stop you from accomplishing your goals."  Schwab's adventure begins and ends at Progressive Field in Cleveland, starting on May12th at the Indians vs. Tampa Bay game and ending on July 3rd at the Indian's vs. Cincinnati Reds game.

To learn more about Schwab's road trip, view his itinerary or make a donation in his honor visit the CCFA website: www.ccfa.org/chapters/neohio/

CCFA Volunteer Wins National Award 

CCFA volunteer and long-time supporter, Joe Melenick (17), of Bay Village, was recently named one of Ohio's top youth volunteers for 2011 by the Prudential Spirit of Community Awards, a nationwide program honoring young people for outstanding acts of volunteerism.  He will receive a $1,000 award and a trip to Washington DC in May.  Joe has hosted an annual bowling party and other events that have raised nearly $50,000 for CCFA in the past five years.  He speaks frequently about Crohn's at his church and various community organizations and helped start a support group for families dealing with IBD. 

Congratulations and thank  you to Joe and his family for their dedication to CCFA! 

Support CCFA Northeast Ohio Programs Every Dollar Makes a Difference!

  • $30 provides a membership to CCFA 
  • $50 provides education brochures to 375 patients
  • $100 funds a month of Information Resource Center translation services for patients
  • $300 supports a Camp Oasis camper for one day

*All contributions are tax deductible.

CCFA Resources for Parents

Crohn's Disease & Ulcerative Colitis:  A Guide for Teachers and other School Personnel

 Doing our Homework: A Parent's Guide to Educational Equity

Taking IBD to School

 Crohn's Disease & Ulcerative Colitis: A Guide for Parents

Contact the CCFA office or visit the CCFA website www.ccfa.org/kidsteens for free copies.

 

 





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