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The Voice

of the Silent Disease

A bimonthly e-Newsletter of the Greater Los Angeles/Orange County Chapter
Volume 3, Issue 2 - April/May 2011

 

Crohn’s & Colitis Foundation of America to Hold its Fourth Annual Women of Distinction Luncheon

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Honoring Jennifer Feikin · Judy Felsenthal · Teri Polo

The Los Angeles/Orange County Chapter of the Crohn’s & Colitis Foundation of America will host their Fourth Annual Women of Distinction Luncheon at the Beverly Hills Hotel on Wednesday, May 4, 2011. Each year the Luncheon honors three women who have distinguished themselves in their careers. This year’s honorees are Jennifer Feikin, advisor to start-up and major media companies and a Trustee of the CCFA National Board, Judy Felsenthal, community activist and philanthropist, and Teri Polo, movie and television actress who is best known for her roles in the Meet the Fockers movies.

This year’s Fashion Show will be presented by Randolph Duke. Mr. Duke’s designs have become highly visible at awards ceremonies, such as the Academy Awards. Whether for high profile clients or not, Randolph Duke’s designs continue to be bold, direct, elegant, and of star quality.

This year’s Luncheon is being co-chaired by Cathy Greenly, Caryl Golden and Ronda Lippman. Proceeds from the Women of Distinction Luncheon benefit CCFA programs for those who suffer from Crohn’s disease and ulcerative colitis, including those specific for children such as Camp Oasis and pediatric research. Known collectively as Inflammatory Bowel Disease (IBD), these diseases affect over 1.5 million people in the United States alone, including 150,000 children.

For further information please contact the Crohn’s & Colitis Foundation of America Greater Los Angeles/Orange County Chapter at 310-478-4500. 

 

CCFA Greater Los Angeles/ Orange County Education Programs 2011

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Happy Spring! The Riverside Patient Education Program started the year off with over 30 people attending to hear Dr. Hack speak about, “Understanding Inflammatory Bowel Diseases.” Our annual Los Angeles Patient Education Conference is coming up on April 16th with Dr. William Sandborn from University of California, San Diego speaking about, “What's in the pipeline? New drugs and treatments for IBD.” This is our largest patient education program in Los Angeles, so don’t miss out. There will also be discussion groups at lunch for people to socialize and network with others attending the conference.

                    

             

 

Take Steps Kickoff Events

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Los Angeles Kickoff Event

April 9, 2011, 6 PM -  8 PM, Santa Monica Pier, at the Carousel

THIS SATURDAY April 9, 2011, 6 PM - 8 PM, Santa Monica Pier, at the Carousel!
Come out to the Santa Monica Pier and join us for the Los Angeles Take Steps Kickoff! Bring your family, friends, coworkers and teammates and enjoy ice cream sundaes, carousel rides and mingling with your fellow walkers!! Please RSVP to ashaif@ccfa.org or (310) 478-4513

Orange County Kickoff Event

Sunday, April 10th from 11 AM - 1 PM, the ESPN Zone in Downtown Disney

Come join us on April 10th at the ESPN Zone in Downtown Disney to celebrate a new season of Take Steps. Bring your friends and family to come and learn how we can hit Take Steps 2011 Orange County out of the park! For more information or to RSVP contact Joslynn at jbroun@ccfa.org or (646) 717-6208. 

 

CONFIRMED!! Comedy Night with Ben Morrison benefiting Take Steps Los Angeles!

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Thursday, May 19, 2011, 8 PM
HOLLYWOOD IMPROV
8162 Melrose Avenue
Los Angeles, CA 90046

Take Steps Take Steps will be hosting a hilarious night out, featuring Ben Morrison, a comedian unlike any performer you've ever seen. $25 per person and a $5 discount if you buy at the Take Steps Kick-off event. Email ashaif@ccfa.org for tickets. Proceeds benefit the Take Steps Walk Campaign for a Cure.

 

You Could Be Our Next Team Challenge Honored Teammate!

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The Los Angeles Team Challenge Triathlon Team is looking for an honored teammate to join us for the inaugural summer 2011 season! An honored teammate is a youth battling Crohn's or colitis who inspires a team of Team Challenge participants to persevere through training and fundraising. Honored teammates serve in a variety of capacities over the course of the season, but most importantly, create a personal connection to the disease that some participants may not have prior to joining the team. If you have questions or are interested in becoming/having your child become an honored teammate, please call or email Rob Baird, Endurance Manager, at 310-694-3341 or rbaird@ccfa.org.

 

Summer 2011 CCFA Camp Oasis Application Now Online
Application Deadline is April 29, 2011

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CCFA Camp Oasis at the Painted Turtle
July 26 - 31, 2011

CCFA Camp Oasis is a co-ed residential camp program that enriches the lives of children with Crohn's disease and ulcerative colitis by providing a safe and supportive camp community. Summer 2011 camper, LIT, and volunteer applications are now available online.

 

CCFA Launches "I'll Be Determined" Web Site Empowering Patients to Better Manage Disease

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Coping with Crohn's disease and ulcerative colitis is a journey of choices. To help educate patients on the right choices to make for themselves CCFA, with support from Abbott, has launched a new interactive web site, IBDetermined.org. The "I'll Be Determined" site takes users through four separate decision journeys: treatment, diet, complications, and living with IBD and provides patients with a wide-range of educational content displayed in an interactive format through engaging questions and video-based tutorials. Visit the site today!

 

New Fact Sheet: IBD & Older Adults

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Crohn's disease and ulcerative colitis are traditionally diagnosed in younger people. However, the fact that they are life-long diseases means that there are many older people who have lived with IBD for many years. Patients can put themselves into a position to have a high quality of life and enjoy their golden years by adopting a strategy for managing their disease that is compatible with their short and long-term goals. Download our new fact sheet: IBD & Older Adults.


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