2014 Annual Benefit Luncheon Featuring Sandra Kim, MD
Thursday, April 24
Hyatt at Olive 8 - Seattle, WA
Featured speaker Sandra Kim, MD is the medical director of the nationally recognized Inflammatory Bowel Disease (IBD) Center at Nationwide Children's in Columbus, Ohio. Dr. Kim’s clinical and research interests focus on pediatric inflammatory bowel diseases, including adolescent transitioning and quality improvement. In addition to be a leading researcher in the field of Crohn's disease and ulcerative colitis, Dr. Kim serves as the Chair of Pediatric Affairs for CCFA and is member of the Executive Committee of CCFA's National Scientific Advisory Committee, the group responsible for reviewing the more than 250 grant applications submitted to CCFA for funding.
In addition to providing valuable insight on the state of pediatric IBD, Dr. Kim will share with guests the inspiring advances CCFA continues to make in the field of IBD research. Do not miss this opportunity to hear from one of the leaders in our field.
Specific Carbohydrate Diet Meeting: A Parent's Perspective
Seattle Children’s Hospital recently held a symposium on nutrition and diet in IBD with an emphasis on the Specific Carbohydrate Diet (SCD). Two outcome studies looking at SCD were presented and lectures discussed the gut microbiome and some theories about how the SCD works. Click here to read an article written by Denise Joffe, parent of a child with Crohn’s, who attended the event. “There is no question that there is interest in nutrition therapy in the management of Crohn’s especially from patients and families. Anecdotal results from hundreds of people with IBD who have been helped by the SCD are extremely encouraging and must be investigated.”
Take Steps Towards a Cure with Hunter
Meet Hunter! Hunter's journey with Crohn's disease began roughly five years ago when he was just 3 years old, and the CCFA has been very important to Hunter and his family during those years. Last year was the first year for Hunter’s family to join the Alaska Take Steps, and their team The Kinard Komandos raised $3,500 to help fund education and research into improved treatments and eventually a cure for those that suffer from Crohn’s and colitis! This year Hunter, continues to take steps in support of CCFA and is raising awareness as our Honored Hero for Anchorage, Alaska.
You can join Hunter in his efforts to raise funds and awareness for Crohn’s disease and ulcerative colitis by joining a Take Steps walk in your area! Register for a walk at www.cctakesteps.org.
Team Challenge Changing Lives One Hero at a Time
In many ways, Ayla is like any other two year old: she loves to play, cuddle, and be tickled. However, she also consumes her food through a gastrostomy tube, gets a medication that suppresses her immune system, vomits at least once a day, and often cries when she has a bowel movement.
Ayla has been battling Crohn’s disease since she was six months old. At that young age, she endured chronic diarrhea, abdominal pain, bloody stools, and mouth ulcers. She was too weak to breastfeed. All tests pointed to Crohn’s. Ayla’s doctors were baffled they had not seen Crohn’s in a child that age. She is still the youngest patient her GI doctor sees.
As difficult as it is to live with Crohn’s, Ayla and her family have found the strength to live fully and happily. When Ayla’s mother joined Team Challenge they found a unique support network. The camaraderie that Team Challenge provides and the hope the family gets through fundraising for cures is irreplaceable.
Click here to learn how you can support Ayla and your local Heroes.
Q: Where can I find resources regarding insurance issues, disability, and other matters on patients’ rights?
A: Check out our website for helpful pages and appeal letters regarding disability, insurance, and more. If you can’t find the answer to your question, please reach out and our Education & Support Manager, Kathleen, will be happy to help. We are also looking for input on what to cover in the Seattle patient education conference. in the session “What Are My Rights? Patient Advocacy, Disability, and More.” Send your questions to Kathleen at email@example.com.
Stay Connected With CCFA All Year Long!
CCFA Northwest has a ton of programs and events planned for 2014 already. Be sure to regularly check our website event page for updates on how you can stay connected!
We’ve got new support groups starting up around the chapter and fascinating speakers lined up at upcoming meetings. Click here to find the support group in your area!