Hi, my name is Lydia Nilsen. I am nine years old. I am currently in fourth grade. I have many friends, compete on a cheer team, and love tumbling. Despite all of the activities I am involved in, there is something that you can’t tell by looking at me. I appear healthy on the outside, but on the inside, I deal with pain and fatigue caused by Crohn’s Disease. Although it makes life difficult, my family, friends, and doctors help me stay positive and remain hopeful for a cure.
I was diagnosed with Crohn’s Disease a couple of months before I turned five. I really don’t know what it’s like to live without Crohn’s Disease. The diagnosis was a challenge for the physicians because I did not present with the typical symptoms.
As a four year old, I was in and out of Nationwide Children’s Hospital for three months before the official diagnosis. My visits did not stop there. I have had multiple hospitalizations with procedures where I was put under anesthesia, along with MRI’s and IV medications. I currently take an oral medication daily and receive IV Remicade at Nationwide Children’s Hospital’s main campus every four to six weeks. My IV infusion lasts at least three hours and I miss a full day of school.
Dealing with this has been hard for my family and me, but because of my experience with Crohn’s Disease, I know that I want to start IV’s and help sick children when I grow up. My biggest dream is to find a cure for Crohn’s Disease.
Join Lydia and her family at the Columbus Walk on June 21, 2014 at Franklin Park Community Gardens. Register today at www.cctakesteps.org/columbus.
A Huge Thank You to our new sponsor Weaver Brothers Eggs! Their partnership will help us support research and education towards finding a cure. Please visit their website at www.weavereggs.com to learn more about what they do.
Planning is now underway for the 3rd. annual Cookies, Cupcakes, Cocktails & More for CCFA.
This event has been so successful that we will need to move to a larger space for 2014!
We will begin our committee meetings in February and would really welcome new members. There are opportunities to
work on restaurant recruitment, sponsorships, marketing/PR, decorations, and more.
For more information, please contact Debbie Shub at 614.889.6060 ext. 1 or firstname.lastname@example.org.
Camp Oasis will be held at Camp Copneconic in Fenton, MI July 6th-12th, 2014. Apply online at www.ccfa.org/camps. The application deadline is March 31st, but space is limited, so please try to apply as soon as possible. If you have any questions, please call 855-847-9433 or email email@example.com.
Camp Oasis is a program for children and teens with medically stable Crohn's disease or ulcerative colitis. We serve campers entering grades 2-11 in 2014, and Leaders in Training entering grade 12 in 2014.
For more information, visit www.ccfa.org/get-involved/camp-oasis/.
We frequently receive calls wanting to know how to make donations to CCFA here’s some helpful information:
Tributes, Memorials and Special Occasion Gifts:
Making a donation in honor of someone (in recognition of a birthday, anniversary, graduation, etc.), or in memory of a loved one, is a meaningful way of helping CCFA in our quest to find a cure for Crohn’s disease and ulcerative colitis. A tribute gift to the Foundation is a compassionate gesture that will make a difference in the lives of people with IBD. Donations may be made online, via phone, or by mailing in a donation form.
Donors can make online tributes two ways:
- Donate online and send a paper card with a personalized message
- Donate online and send an eCard to any email address in the world
Both donation options can be found on online.ccfa.org/site/PageNavigator/Honor_Memorials.
To get the Tribute Memorial Donation Form, click here.
The form can be mailed directly to the chapter office: CCFA, 6797 N. High St. - #119, Worthington, OH 43085
Or you can always donate by calling the office, 614.889.6060.
Special Occasion Gifts
Couples today are choosing to make a donation to their favorite charitable organization rather than provide traditional party favors. The same applies for other celebratory events including anniversaries and bar/bat mitzvahs.
To honor family and friends, in lieu of favors, donors can make their celebration even more special by helping the more than 1.4 million Americans who suffer from Crohn's disease or ulcerative colitis. In return for this gift, The Crohn’s & Colitis Foundation offers a certificate for display at the wedding or special event.
Additionally, guests of a special event—or special event hosts who would like their guests to make a donation in lieu of a gift—should be directed to CCFA’s Tribute/Memorial program at online.ccfa.org/site/PageNavigator/Honor_Memorials.
CCFA is a volunteer driven/staff supported organization. Our chapters have a very small number of paid staff and our success is dependent on strong partnerships with our many volunteers. Our volunteers serve on our board of directors and its committees, they provide the leadership for our special event committees and Take Steps committees, they support us in the office, they volunteer at our educational programs, and much more.
If you would like to join our incredible group of volunteers, please complete the Volunteer Interest Form
and submit to our office.
If so, please register on-line with their Community Rewards program. A percentage of the money you're already spending can benefit the Central Ohio Chapter of CCFA. If you're already enrolled, please note that you MUST re-enroll AFTER April 1, 2013 (and again in 2014) to continue earning rewards during the coming year.
To enroll for the first time, visit www.krogercommunityrewards.com, click on "Columbus, OH" and click on "Enroll". To re-enroll, go to the website or Kroger.com and SIGN IN. The # to enter for the Crohn's & Colitis Foundation is 90327. If you have any questions, just call 1-800-KROGERS.