Ask the Experts
On March 15th, the 2014 Ask the Experts program will be held from 9 AM until 12 PM at the Holiday Inn Independence. Registration, exhibits, and breakfast begin at 8:30 AM.
Topics will include medical updates and IBD, IBD and surgery, nutrition and IBD, and coping with IBD. Sessions will feature a keynote speaker and a panel of experts on each topic. A patient panel will address living well with IBD.
This program is FREE for CCFA members and $5 for the general public. Visit www.ccfa.org/get-involved/become-member for more information about membership.
For more information, contact the CCFA Northeast Ohio Chapter at 216.524.7700 or email firstname.lastname@example.org.
Please meet Take Steps Cleveland 2014 Honored Hero Katie Alkire
Hi, my name is Katie Alkire. I am nine years old. I love art and doing crafts. I started dancing when I was two and I have been on the competition dance team for five years. I want to be a veterinarian when I grow up. I love horses. I was diagnosed with severe Ulcerative Colitis one month after my fifth birthday. I had been sick for about six months before, but the doctors weren't sure what was wrong. They said that it was really rare to have severe Ulcerative Colitis at my age. The day I was diagnosed, I was admitted to the hospital for twenty days. It was the first of a lot of hospitalizations. I've been in the hospital fourteen times in the last eighteen months. Since I was diagnosed, I have taken up to a dozen pills a day, IV Remicade infusions every month and weekly Humira injections. The medicine didn't work. In June of 2013, I had a total colectomy at the Cleveland Clinic Childrens Hospital. Two more surgeries later, I have a JPouch and it is working great!
Having Ulcerative Colitis has been really hard. I've missed a lot of school and I've had to celebrate birthdays and holidays in the hospital. I did my first Take Steps Walk last year. I was only allowed to stay for a little while because I was scheduled for surgery the next morning. I wasn't able to walk, so my dad pulled me and my best friend, Sophia, in a wagon. This year, I am so excited to be the Honored Hero because I want people to know how important it is to find a cure for kids like me.
Join Katie Alkire and Team Katie at the 2014 Take Steps Cleveland Walk! Register today at www.cctakesteps.org/cleveland.
Camp Oasis 2014
Camp Oasis will be held at Camp Copneconic in Fenton, MI July 6th-12th, 2014. Apply online at www.ccfa.org/camps. The application deadline is March 31st, but space is limited, so please try to apply as soon as possible. If you have any questions, please call 855-847-9433 or email email@example.com.
Camp Oasis is a program for children and teens with medically stable Crohn's disease or ulcerative colitis. We serve campers entering grades 2-11 in 2014, and Leaders in Training entering grade 12 in 2014.
For more information, visit www.ccfa.org/get-involved/camp-oasis/.
Nancy Melenick believes that being involved in CCFA has been a family affair. “I became involved with CCFA in late 2005 when my son Joey was newly diagnosed with Crohn’s disease and decided to have a fundraiser instead of a big 13th Birthday party. He started Joe’s Crohn’s Fighting Fundraiser, and our family has been involved in many CCFA events ever since then!” Joe’s Crohn’s Fighting Fundraisers were held every year by the Melenick family each year from 2006-2011, raising over $60,000 for CCFA research and Camp Oasis.
Joey and Nancy, along with husband Joe and daughter Sarah, began volunteering at CCFA events, including Take Steps, Ask the Experts and other education events, the annual Golf outing and more. Nancy served as a member of our Board of Directors for 7 years. Nancy, Joey and Sarah participated in Team Challenge in 2011 in Las Vegas. The family received the Sheldon Leventhal Award in 2008 for their volunteer efforts.
Nancy believes that her family’s openness and involvement have raised awareness of Crohn’s disease. Many of their friends and family knew nothing of the disease when Joey was diagnosed. “Education and support are so important in tackling these diseases, especially in the beginning. I am most proud of the work we have done to set up a support network on the West Side of Cleveland.” In 2006, Nancy started the CCFA West Side Mutual Support Group. She is often in contact with newly diagnosed patients and families, either at the group or via email / phone. “When I see someone doing well that has benefitted from our group, people they have met through our group or information they received from one of our speakers, it is the best feeling”.
In June, 2013, Nancy received The Rosenthal Award for Patient Support and Care. Nancy has worked in Merchandise Planning & Allocation management at Things Remembered for 18 years and lives in Bay Village with husband Joe. Joey and Sarah are now students at Miami University.
27th Annual Golf Tournament
For more information about sponsorships and foursomes, please contact Debbie at firstname.lastname@example.org or call the office at 216.524.7700.
Get Involved With Your Local Chapter!
We have a wealth of volunteer opportunities available, both in office and some that can be done from home. Opportunities include: joining an event/program committee, participating in Take Steps, volunteering at events & educational programs, delivering educational materials to GI practices, & assisting with administrative work in the office. Please complete our Interest Form and email to email@example.com with the subject line: 'Interest Form'.
Want to Know How to Make a Donation to CCFA?
We frequently receive calls wanting to know how to make donations to CCFA here’s some helpful information:
Tributes, Memorials and Special Occasion Gifts
Making a donation in honor of someone (in recognition of a birthday, anniversary, graduation, etc.), or in memory of a loved one, is a meaningful way of helping CCFA in our quest to find a cure for Crohn’s disease and ulcerative colitis. A tribute gift to the Foundation is a compassionate gesture that will make a difference in the lives of people with IBD. Donations may be made online, via phone, or by mailing in a donation form.
Donors can make online tributes two ways:
- Donate online and send a paper card with a personalized message
- Donate online and send an eCard to any email address in the world
Both donation options can be found on online.ccfa.org/site/PageNavigator/Honor_Memorials.
To get the Tribute Memorial Donation Form, click here.
The form can be mailed directly to the chapter office:CCFA, 4700 Rockside Road, Suite 425, Independence, OH 44131.
Or you can always donate by calling the office, 216.524.7700.
Special Occasion Gifts
Couples today are choosing to make a donation to their favorite charitable organization rather than provide traditional party favors. The same applies for other celebratory events including anniversaries and bar/bat mitzvahs.
To honor family and friends, in lieu of favors, donors can make their celebration even more special by helping the more than 1.4 million Americans who suffer from Crohn's disease or ulcerative colitis. In return for this gift, The Crohn’s & Colitis Foundation offers a certificate for display at the wedding or special event.
Additionally, guests of a special event—or special event hosts who would like their guests to make a donation in lieu of a gift—should be directed to CCFA’s Tribute/Memorial program at online.ccfa.org/site/PageNavigator/Honor_Memorials.