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News to Digest from CCFA Southwest
September 2013


To join our newsletter mailing list please email us, southwest@ccfa.org.

IN THIS ISSUE

Southwest Chapter Fall Events
Updated Support Group Information
Meet Albuquerque's Take Steps Honored Hero
It's Time for Team Challenge Vegas!
CCFA Partners Registry
"Like" Us on Facebook
Matching Dollars for CCFA

Southwest Chapter's Fall Events

ONLINE

online webcast Sept 2013

Tuesday, September 17th at 5 pm (PST/AZ) Pain Management Webcast This program will provide patients and loved ones with information on causes of pain in IBD, and discuss various therapies that may provide relief. The event will also discuss the overlap between IBD and IBS, and how research on IBS may inform treatment of pain in IBD. FREE Registration 


ARIZONA

2013 Tucson UIBD

Wednesday, October 2nd at 7 pm Understanding Inflammatory Bowel Disease: What Every Patient Needs to Know presented by Dr. Mark Lin, assistant professor of medicine at University of Arizona and IBD specialist. Join us for this FREE educational event in Tucson for patients, families and caregivers living with Crohn’s disease and ulcerative colitis. Check our Events page for registration and more information on this event.

Tucson TS 2013

Saturday, October 12th at 3 pm Take Steps, Be Heard Tucson Walk and Festival at Brandi Fenton Memorial Park  Register and get more information here. Meet other members of the Tucson IBD community, enjoy our walk, snacks and fun activities while raising awareness and money to help find a cure.

 

2013 Scottsdale Nutrition

Thursday, October 24th at 7 pm Nutrition and IBD: Choices for Adults and Kids presented by registered dietician, Lisa Goldberg and Dr. Suryakanth Gurudu, a gastroenterologist from the Mayo Clinic. Join us for this FREE education event in Scottsdale for patients, families and caregivers discussion the role of nutrition, an overview of diets used by IBD patients, and how to eat well with IBD as well as a question and answer period with a dietician and a gastroenterologist. Register here for this event. 

Coming soon

Saturday, November 23rd, morning Pediatrics and IBD at Phoenix Children's Hospital. More information about this education event for parents and kids coming soon to Phoenix!  

NEVADA

Las Vegas 2013 PIAB

Wednesday, September 18th at 6:30 pm Understanding Irritable Bowel Disease: What Every Patient Needs to Know presented by Dr. Christian Stone, a local gastroenterologist and IBD specialist. Join us for this FREE educational event in Las Vegas for patients, families and caregivers living with Crohn’s disease and ulcerative colitis. Register here for this event.  

Sunset Rock n Run.jpg

Saturday, September 28th at 6:30 pm Sunset Rock N' Run This sunset race is walker and family friendly on a fully enclosed course through three fabulous Las Vegas parks. Join us at the finish line festival with a live band, food vendors, fitness and health expo. Register here for this event.

 

Scherr 2013

Saturday, October 19th at 8 am 2nd Annual Scherr Madness Golf Tournament Let's celebrate summer finally being over! Join us for our second Scherre Madness Golf Tournament at Red Rock Country Club in Las Vegas. Register Here 

 

2013 Team Challenge

Sunday, November 17th at 5 pm Team Challenge Las Vegas Half Marathon It’s our biggest Southwest fundraiser. Take in the world-famous Vegas Strip – it’s the race course, after all. And rock out on your run with live music. Register Here

 

NEW MEXICO

2013 ABQ TS 

Saturday, September 28th at 1 pm Take Steps, Be Heard Albuquerque Walk and Festival at Kit Carson Memorial Park  Register and get more information here. Meet other members of the Albuquerque IBD community (including our support group leaders), enjoy our walk, snacks and fun activities while raising awareness and money to help find a cure.

 

  


support groups
Updated Support Group Information

With fall comes new and updated support group information:

  • Albuquerque's Adult Support Group has an updated schedule and location here.
  • Coming Soon! Albuquerque's Family Support Group (for parents and kids) will have a BBQ after the Albuquerque Take Steps, Be Heard Walk. Email southwest@ccfa.org for more information.
  • Las Vegas' Support Group is getting a big makeover--new faciliator, new hospital, new times. See here for the latest.

Click for more information about all our support group times and places  

Or contact our office about starting your own support group.


2013 Karissa ABQPatient Spotlight and Albuquerque's Take Steps Honored Hero

 

Meet Karissa, this year's Honored Hero for Albuquerque's Take Steps, Be Heard Walk and Festival

"I've come to far to give up now" - Anonymous

I feel strong, I feel alive, I feel healthy, and I feel free.

Has the journey living with Crohn's always been like this? Not for me. I've had my fair share of hospitalizations, poking, prodding, and every test done I never thought would happen before the age of 18. There were the dark times that come with this disease and the thoughts of "when will it ever end?" The side effects of the medications were horrible, sometimes causing hospitalizations and months of recovery. Most days all I could do was hold my head up to get through another day and hope for better.

Hi, my name is Karissa, I'm 29, and I have Crohn's Disease.

I've had symptoms since I was 10, I was diagnosed at 17, and mistreated medically the 10 years following. In 2010, I found wonderful treatment and great doctors at Cedars Sinai in Los Angeles, CA. I was told I had a very rare, very severe type of Crohn's. The next 2 1/2 years was like starting over, but it was all worth it. It's how I could start this bio with a statement of hope, strength, health, and happiness. I came to understand my Crohn's as being unique - it's a chronic illness, and there is no cure, but I have so much more in my life than my disease.

I have my faith, my family, my strength, and my hope. I'm stronger than this disease. Sometimes it may not look or feel like it, but I am. I've come too far living with this disease to give up now! Everyday I work to manage my Crohn's through meditation, lifestyle choices, and positive thinking. I've learned to read my body and know my symptoms. To live with a chronic disease happily is a lifestyle that took many many years, but I'm the healthiest and happiest I've been in a very long time. I remind myself every day that I am stronger then this disease, and with love and support everyday is a blessing.

Go to www.takesteps.org to find out about our next Walk and Festival in your area.

 

2013 Team Challenge

It's Time for Team Challenge Vegas!

 

Our Team Challenge participants are training and raising money for CCFA, getting ready to run the Las Vegas Strip on November 17th. (is it too late for people to join?)

Support our participants at these upcoming events:
Sept 7 OHSO

Dark Star Yoga

Saturday, October 19th from 12:00 to 3:30 pm Yoga for a Cure at Dark Star Yoga in Scottsdale, Arizona More information coming next month.

 

The funds we raise through Take Steps and Team Challenge will help support patient programs, enhance professional education efforts, and propel critical research for cures. Thank you for your continued support.


CCFA partners

CCFA Partners Registry

 

 

CCFA Partners is working towards improving the quality of life for patients with inflammatory bowel disease (IBD) through research and education. Previously, this research was limited to adults, but this month, CCFA Partners is looking to enroll children and adolescents.

Nearly one fourth of individuals with IBD are diagnosed during the childhood or teenage years. Special consideration must be given to pediatric IBD patients who are undergoing rapid physical and mental growth and development. The effects of the disease and treatment in this population need to be better understood.

The goal of CCFA Partners Kids & Teens is to create a long-term community of patients who are engaged in research. This important study will focus on aspects of IBD that are most important to patients and their parents, including health behaviors, disease symptoms, and quality of life. The entire study takes place over the internet.

Whether you're an adult or child with IBD, please consider participating.  By joining, you will not be asked for monetary contributions. We only ask that you complete a short online survey twice a year on your health history.  Sign up here. 
 

facebook

"Like" Us on Facebook

Liking these Southwest Chapter Facebook groups will give you access to the most up-to-date information on events, research, and other happenings.

Chapter Facebook Pages

Southwest Chapter Facebook linkLas Vegas Chapter Facebook link

Take Steps Facebook pages

https://www.facebook.com/pages/Take-Steps-Albuquerque/

https://www.facebook.com/takestepslasvegas

https://www.facebook.com/TakeStepsPhoenix

https://www.facebook.com/pages/Take-Steps-Tucson/

Team Challenge Facebook page:

https://www.facebook.com/tclasvegas

Matching Dollars for CCFA

Double Your Donation until September 15th

 

 

Need help?

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Contact our Information Resource Center: 888.694.8872 or www.ccfa.org. For tips, sharing, and support from other people with Crohn's disease or ulcerative colitis, join our free CCFA Community site.


Our mission

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To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.


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