In this month’s CCFA Northwest e-newsletter:
- Introducing Take Steps Honored Hero Maddy!
- Team Challenge Northwest is Pounding the Pavement for a Cure!
- Cowboys vs. Crohn's Riding for a Cause
- Parents Share Wisdom Through "Power of Two" Program
- IBD Q&A: "How can I manage pain from IBD safely and effectively?"
- Join us at our CCFA community picnic!
Introducing Take Steps Honored Hero Maddy!
With the fall Take Steps walks just around the corner, we’d like to introduce the Honored Hero for the Bend, Oregon Take Steps Walk!
Two years ago, 10 year old Maddy Hoxie began developing daily pain along with other severe symptoms. After two years of having to drive 4 hours to Portland on a regular basis, enduring a battery of painful and uncomfortable tests, Maddy was diagnosed with Crohn’s disease in March of 2013. Now she is finally starting to feel like a normal 10 year old again! In Maddy’s words “I have an illness and I wouldn’t wish on anyone but I'm still a normal kid and I won’t let it become my identity. I hope by doing the Take Steps walk this year I can meet others like me. I want to become someone that encourages kids like me!”
Please join the Fall Take Steps Walk campaign by visiting www.cctakesteps.org to find the walk closest to you!
Take Steps Billings, MT – September 14, 2013
Take Steps Eastern WA – September 28, 2013
Take Steps Bend, OR – October 12, 2013
Team Challenge Northwest – Las Vegas Rock n Roll ½ Marathon Team
Congratulations and Thank You to our amazing 64 teammates, 9 mentors, and 3 coaches who are walking, running, and logging the miles and fundraising for a cure with Team Challenge Northwest. It’s not too late to join in the fun! You’ll receive fundraising support, individual coaching, and an expenses-paid trip to Las Vegas for the Rock and Roll ½ Marathon on November 17th. Check it out at www.ccteamchallenge.org or email EWissig@ccfa.org (Oregon) or JackieM@ccfa.org (Washington, Idaho, Alaska & Montana) for more information.
Two Cousins Riding For a Cause: Relief For Those With Crohn's Disease
Cousins Nick Roach and Jack Chambers designed Cowboys vs. Crohn's to combine the best parts of their summers working on the ranch in Montana with a cause that they can truly support given the way Crohn’s has affected their family. The trip is taking them 1,300 miles on horseback from Gardiner, MT to Bellingham, WA. They're riding through dozens of cities and towns (full itinerary on their website), playing music and spreading awareness along the way. Their hope is to reach as many people as possible through local news outlets, the internet and social media, and by word-of-mouth. They've partnered with CCFA and are donating the money raised toward research to find a cure. You can show your support by making a donation in their name here. Thank you for your generosity and follow their journey on Facebook or on their website!
Parents Share Wisdom Through “Power of Two”
Jill’s 3 ½ year old son was diagnosed with Crohn’s disease last year and she requested to speak with other parents through CCFA’s Power of Two support program. In her application, she stated: “As parents, making decisions on behalf of our young son, we would like to hear the experience of someone in a similar situation—what having the disease has been like, their choice of treatments, etc.”
CCFA introduced Jill by email to Rob and Liz, Power of Two volunteers whose six-year-old son was diagnosed with ulcerative colitis five years ago. They’ve been through a number of treatments and surgeries and are a wealth of knowledge on having a young child with IBD. Jill spoke with Rob and Liz on the phone for about an hour and they have followed up on email since.
“They were both extremely generous to give their time and share their story with us... it was very useful and helpful,” said Jill.
Learn more about CCFA’s Power of Two program and request support or volunteer to help others.
How can I manage pain from IBD safely and effectively?
Tune into CCFA’s upcoming webcast, “Pain in IBD: Causes & Treatment Options” on September 17. This program will provide patients and loved ones with information on the causes of pain in IBD and discuss various therapies that may provide relief. Register today!
CCFA Community Picnic!
Sunday, September 15, 4-6 PM, at Seward Park in Seattle
Come meet others living with Crohn’s or colitis! Bring your family and friends—all are welcome to attend. Learn more and RSVP here. For those outside of Seattle, meet fellow “IBDers” at your local support group meeting.
Events Around the Region:
Wednesday, Sept 11: Nutrition & IBD -- Bend, OR
Saturday, Sept. 14: Take Steps Montana – Billings, MT
Sunday, Sept. 22: Team Challenge TriRock Triathlon – San Diego, CA
Saturday, Sept. 28: Take Steps Eastern Washington – Spokane, WA
Thursday, Oct. 3: College and IBD -- Seattle, WA
Saturday, Oct. 12: Take Steps Bend -- Bend, OR
Saturday, Oct. 19: Education Program --Billings, MT
Wednesday, Oct. 23: Decision Making & IBD -- Vancouver, WA
Oct. TBA: Education Program -- Spokane, WA
Saturday, Nov. 2: Best Practices in IBD Management – Renton, WA
Saturday, Nov. 9: Casino Night & Auction --Seattle, WA
Wednesday, Nov. 13: Clinical Trials in IBD -- Puyallup, WA
Saturday, Nov. 16: Nursing Perspectives: Management of IBD -- Portland, OR
Sunday, Nov. 17: Team Challenge Rock & Roll Half Marathon – Las Vegas, NV