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CCFA Newsletter

eNewsletter of the Kentucky Chapter

April 2013


 

Take Steps

We are in full swing for our 2013 Take Steps Campaign and we are so excited about the new opportunities this year will be bringing the foundation.

Lexington Saturday May 11, 2013 www.cctakesteps.org/lexington

Louisville Saturday May 18, 2013 www.cctakesteps.org/louisville


Nutrition Webcast

CCFA will host a national telecast on April 10 from 1 to 2:15 PM EST. The topic is Nutrition & IBD. Additional information about registering for this free webinar we be coming soon. But please save the date.


MEET GI BUDDY

GI Buddy is the Crohn's and Colitis Foundatin of America's new online and mobile disease managment tracking tool. It helps patient's record important aspects of their IBD symptoms, and creates views of their overall health to share with their healthcare team. It's easy to use and users can even track information on the go through the mobile app! Users can use the tool to log symptoms; stay on top of IBD treatment, record the foods they eat, monitor their overall well-being and get their total health picture in customized reports.

For more information click

https://gibuddy.ibdetermined.org/

 


WEBINAR ARCHIVE

 

CCFA host muitple webinars thorugh the year covering many different types.Missed the webinar or interested in learning more about a specific topic.

www.ccfa.org/resources/webcasts

 


Mark your calendar for our first annual

 

"Ask the Experts"

Saturday October 5, 2013

8:30am AM - Registration & Breakfast

9AM- 12:30PM - Program

Topics include:
IBD research updates and Clinical Trials
Maintenance Issues and IBD
Financial impact of Chronic Diseases
IBD and Employers
Psycholosical and Mental Health Issues
Surgeon vs. Gastro with Q&A

Registration for this program will be available Summer of 2013. Additional information will be available on our website.

 



TC

Team Challenge is an endurance training program designed to raise funds to cure Crohn’s disease and ulcerative colitis.  Team Challenge trains novice athletes to run or walk a half marathon over a 16-week period, culminating in a half marathon event. Team Challenge is taking you to Napa, Kona, and Virginia

Click here to learn more

If you are interested in learning more about Team Challenge from a Kentuckiana and fellow patient, please contact Christine Stavros at niota56@gmail.com or 502-216-9561


Volunteer & Internship Opportunities

 We love our Volunteers and welcome all interested people to help in the fight against IBD.
Your help is needed with our Take Steps Fundraiser, Love Your Guts Event, Ride Your Guts Out, Adopt a Doctor Program, Educational Programs, Administrative Help and Leadership Committee.

We are also looking for College Interns to help with Take Steps and additional fundraising events. Fall, spring and Summer Interns are welcome. College credits available.

Click here for additional information about the Internship

 For more information about our volunteer and internship program, call us at (646) 623-2620.

 


CALENDAR OF EVENTS

Take Steps Lexington 2013
May 11, 2013 at 4:00pm
Coldstream Park and Legacy Trail

Take Steps Louisville 2013
May 18, 2013 at 4:00pm
Waterfront Park * Big Four Lawn's Swing Garden 

Cupcakes and Cocktails
September 21, 2013
Eclipse Bank in Louisville

Ask the IBD Experts
October 5, 2013
Baptist Hospital East


SUPPORT GROUPS

Paducah Support Group
* First Thursday of Every Month *
Lourdes Hospital, 1530 Lone Oak Road Paducah, KY 42003
Contact: Renee Koehler for additional information Brkoehler1@gmail.com

 Louisville Adult Support Group
*Second Wednesday of every month at 7:00p*
THE APRIL MEETING WILL BE AT LIVE WELL CHIROPRACTIC (IN THE VOGUE CENTER IN ST.MATTHEWS)
Eclipse Bank 3827 Shelbyville Road Louisville, KY 40207
Contact: Cheryl Portman for additional information clportman@aim.com

Louisville Pediatric & Parent Support Group
* Third Thursday of every month at 6:30p*
Norton Medical Plaza Brownsboro
4950 Norton Healthcare Blvd, Louisville KY 40241, Suite 301
Contact: Jenny Silberisen for additional information jsilberisen@ccfa.org

 Ashland Support Group
*Second Tuesday of every month at 6:00p (even numbered months)*
Kings Daughter Medical Center 2201 Lexington Ave Ashland, KY 41101
Contact: Deena Stewart for additional information
stewartgang@roadrunner.com

 Oak Grove Support Group
First Thursday of every month at 6:30pm
1705 Thompsonville Lane
Oak Grove, KY 42262

Contact: Jeffery Wells (757) 706-0254

Lexington Support Group
* Fourth Tuesday of every month at 7:00p*
THE APRIL MEETING WILL BE AT 7:30 (NOT 7:00PM)
Eagle Creek Library
101 N. Easgle Creek Drive Lexington, KY 40509
Contact: Jenny Silberisen for additional information jsilberisen@ccfa.org

Visit our Chapter website for additional information on events and to see current information about the chapter
www.ccfa.org/chapters/kentucky


 

A SPECIAL THANK YOU TO OUR CHAPTER WIDE PARTNERS

Eclipse Bank'


d Colitis

A SPECIAL THANK YOU TO OUR NATIONAL PARTNERS

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