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The Voice

of the Silent Disease

A bimonthly e-Newsletter of the Greater Los Angeles/Orange County Chapter
Volume 4 · Issue 2 · March/April 2012

Take Steps Kick-Off Party!


Come meet other IBD community members at our annual Take Steps Walk Kick-Off party! The Market's vendors are filled with incredible vendors. We'll have food catered by The Curious Palate, a gluten-free cooking demonstration by The Gourmandise School, free gluten-free ice cream from Nice Cream, face painting, and so much more!

Where: Santa Monica Place Mall | The Market | Third Floor
When: Saturday, April 21, 2012 | 3:00 - 5:00 PM

RSVP today by emailing or calling (310) 478-4500 with your name and number of people joining you.


Mark Your Calendar!
Take Steps Walks Near You

2012 Take Steps teams are signing up! Take Your Steps and Be Heard. Register today to secure your place and start spreading awareness about Crohn’s disease and ulcerative colitis!

Summer Take Steps Walks:

  • Saturday, May 19, 2012
    Santa Barbara
    Chase Palm Park – Register
  • Saturday, June 23, 2012
    Los Angeles
    Santa Monica City Hall – Register
  • Sunday, June 24, 2012
    Orange County
    Aldrich Park, University of California, Irvine – Register

Fall Take Steps Walks:

  • Saturday, September 8, 2012
    Long Beach
    El Dorado West - Willow Grove Park  – Register
  • Saturday, September 15, 2012
    Santa Clarita
    Chick-fil-A Valencia Town Center – Register

Fall walks committees are forming, if interested in joining, contact Megan Furst at (310) 478-4509 or


Tri a New Fitness Challenge

Accomplish incredible! Train for sprint-distance TriRock San Diego with Team Challenge while you support CCFA! Team Challenge participants receive top-notch coaching over a 16-week training program that prepares them to conquer the race on September 9th. TriRock San Diego is a fantastic race in a great location and features bands throughout the course and a red-carpet finish – just what you deserve! Our coaches have a 100% race-day success rate and will show you that YOU can cross that finish line too!

Learn more by joining us at an upcoming info session:

  • Wednesday, May 2, 7:00 p.m. - Road Runner Sports
    25359 Crenshaw Blvd. Torrance, CA 90505
  • Thursday, May 3, 7:00 p.m. - Runner's High
    5338 E 2nd Street, Long Beach, CA 90803
  • Tuesday, May 8, 7:00 p.m. - Runnergy
    14802 Ventura Blvd., Sherman Oaks, CA 91423
  • Saturday, May 12 - 10:00 a.m. - TriLAB
    3328 Pico Blvd., Santa Monica, CA 90405
  • Wednesday, May 16 - 6:30 p.m. - El Cholo
    1025 Wilshire Blvd., Santa Monica, CA 90401

If you have questions about the program, want to RSVP for an info meeting, or want to set up a 1:1 meeting, please contact Endurance Manager Rob Baird at (310) 694-3341 or Also, learn more at!


Fifth Annual Women of Distinction Luncheon


Thursday, May 3, 2012



Jamie Lee Curtis · Barbara Herman · Pamela Pierce

Fashion show presented by Badgley Mischka

Members of the Women of Distinction Luncheon Committee preparing invitations for the event

Funds raised will support cutting-edge medical research and CCFA programs for those who suffer from Crohn's disease and ulcerative colitis

For more information: (310) 478-4500


The Roddenberry Foundation Supports the Crohn’s & Colitis Foundation

Roddenberry-Foundation-Logo.jpgThe Roddenberry Foundation funds paradigm-changing solutions to global issues in world communities. Honoring the legacy of Gene Roddenberry and the future he envisioned through Star Trek, the Foundation champions his timeless ideal that we can create a brighter future in a world where humanity works together for the greater good. Co-founded in 2010 by Gene’s son, Rod Roddenberry, the Foundation strives to affect that reality by supporting humanitarian advances and innovation in education, the environment, science and technology.

In an effort to promote discovery and encourage cutting-edge research in the field of Irritable Bowel Disease (IBD), The Roddenberry Foundation supports the work of the Crohn’s & Colitis Foundation. Its grant funds the Pediatric Network’s Risk Study and Micro-Bio Project, which focus on treatment protocols for children, as well as research on the roll of the CD47 protein in IBD and how this protein could regulate the immune responses during the treatment of IBD.

“We are proud to be part of the journey that could dramatically change the lives of children and adults who suffer from IBD,” said Rod Roddenberry, chair of the board of directors of The Roddenberry Foundation. “We hope our support can inspire a greater awareness of this disease and the great work that is being done in this underdeveloped area of research.”


CCFA Greater Los Angeles/ Orange County Education Programs 2012

Happy spring! Our LA and OC youth clubs started the year off with a bang. In LA we had over 50 people bouncing at Sky High Sports. In OC we had 20 people bowling at Irvine Lanes. Stay tuned for details on our next youth club event.

In Santa Barbara on March 1st Dr. Thomas Aguirre spoke about vaccinations and cancer screenings for IBD. We also had our annual Los Angeles Patient Education Conference on March 31st at UCLA. Dr. Shane Devlin from the University of Calgary was our keynote. He spoke about Alternative Therapies for IBD. We also had sessions on traveling with IBD, nutrition, IBD basics and much more. All the Conference slides are available for download.

We would also like to thank the following sponsors for their generosity, which make our education programs possible!





CCFA Youth Event: Pump It Up!

When: Thursday, April 26, 2012, 4:45 - 6:45 p.m.

Where: Pump It Up, 16871 Noyes Ave, Irvine.

What: Come visit with old friends, and meet some new ones!

MUST RSVP: For more info, contact Sabrina Irsay, Community Development Manager at (646) 942-3888 or


Archived Telecast of Transitions in IBD Teleconference

If you missed the teleconference on Transitions in IBD the archived telecast and slides are now available. The teleconference was presented by Laurie Fishman, MD and Maureen Kelly, MS, RN, CPNP.

Topics covered by this program were:

  • Differences between pediatric and adult IBD care
  • Processes and goals for transitioning from pediatric to adult IBD care
  • Differences in IBD treatment and management options when transitioning care
  • Best practices to improve the quality of life for patients who are transitioning from pediatric to adult IBD care

Visit the CCFA webasts page to view the Transitions in IBD teleconference. 


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