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The Voice

of the Silent Disease

A bimonthly e-Newsletter of the Greater Los Angeles/Orange County Chapter
Volume 4 · Issue 1 · January/February 2012

Team Challenge is Back!

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Train for a half-marathon or triathlon with the best coaches in the business – coaches with a 100% race-day success rate! No matter your athletic ability, we can help you cross the finish line! Half-marathon program informational meetings start this month - click here to see them all and join us at one to learn how you can make a difference in the lives of millions as you accomplish something you have never thought doable before! For more info, contact Jenni at (310) 694-3343 or jerickson@ccfa.org.

 

What’s Your Take Steps Team Name?

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2012 Take Steps teams are signing up! We’ve got “Rumbly in my Tumbly” and the “Poo Crew” in Orange County, while “Tough Tummies” and the “Colon Crusaders” in Los Angeles! Santa Barbara is rockin’ with “Shyloh Star Sassy Pants”, “Dream Team” and “Mari’s Got Guts!” What’s your team name? Register today to secure your place and start spreading awareness about Crohn’s disease and ulcerative colitis!

  • Thursday, May 19, 2012
    Santa Barbara
    Chase Palm Park – Register
  • Saturday, June 23, 2012
    Los Angeles
    Santa Monica City Hall – Register
  • Sunday, June 24, 2012
    Orange County
    Aldrich Park, University of California, Irvine – Register

Exciting News: We're Taking Steps in the Fall!

Take Steps is introducing TWO new Fall 2012 Walks! Specific dates and locations are yet to be determined, but we promise you’ll be the first to know!

Long Beach Take Steps Walk
Santa Clarita Take Steps Walk

Santa Barbara Take Steps Kick-off Party
Zodo's Bowling & Beyond!

Come meet other IBD community members at our annual Take Steps Walk kick-off party! There will be bowling, food, drinks and information about the Walk, CCFA, and support groups in your area. RSVP today by emailing ashaif@ccfa.org with your name and number of people joining you.

Where: Zodo's Bowling Alley 5925 Calle Real Goleta, CA 93117
When: Saturday, March 10, 2012, 12-3 p.m.

PS-We have a few lanes donated to us for free! The first 30 people to RSVP early will get these spots!

 

Ben Morrison is Back!

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And he's giving to Take Steps for Crohn's & Colitis! 15% of DVD sales are donated to CCFA, so if you missed its run in Southern California last year, want to watch it over and over again, or are thinking of giving as a gift, now is the perfect time. Channeling the lighter side of Crohn's disease, Ben's story is empowering and delightful! Why not take ownership of it all through laughter? With a comedian's heart and a patient's behind, Pain in the Butt is a touching tale about a touchy tail. Pain in the Butt. It's funny on the insides. Shop here.

 

Why I Walk Campaign. Join the Movement.

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Tell us why you walk for Take Steps. Do you walk because you are battling this disease? Do you support a parent, child or sibling? Do you have an incredible co-worker or friend who motivates you daily? Inspire others today by sharing your story and let them know they are not alone. One of the most important characteristics of Take Steps is building a community, so that isolation is not a side-effect of these diseases. Send your letters, pictures or video to ashaif@ccfa.org to be featured on our website and newsletters.

 

Fifth Annual Women of Distinction Luncheon Planning Underway

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Honorees Chosen for 2012 Event

Plans are underway for the 5th Annual Women of Distinction Luncheon, to be held on Thursday, May 3, 2012 at the Beverly Hills Hotel. The Luncheon is being co-chaired by Caryl Golden, Cathy Greenly and Ronda Lippman. This year’s honorees are Jamie Lee Curtis, Author, Actress and Activist; Barbara Herman, Philanthropist; and Pam Pierce, Co-founder and Director Emeritus of the CineStory Foundation.

“We are proud to have such a distinguished group of honorees as part of this year’s event,” said Cathy Greenly. “They join a very elite group of women who we have been proud to recognize each year as Women of Distinction. We also are working with an amazing committee that is dedicated to making this year’s luncheon a spectacular event.”

“This is a milestone year for our Luncheon,” said Caryl Golden. Our past 4 fashion show presenters have been Carolina Herrera, Oscar de La Renta, Chloe and Randolph Duke. This year we are thrilled to have the amazing Badgley Mischka joining this illustrious group.

“Our Ultimate Raffle will feature fabulous designer jewelry and handbags from many of the stores on Rodeo Drive,” said Ronda Lippman. “We want to thank all of our donors for their amazing items and David Yurman for partnering with us again this year by opening up their store for a special event with the proceeds benefiting CCFA.”

Invitations will be in the mail in the next few weeks. We encourage everyone to make their reservations early....as we sold out last year. For further information contact: Paddy Harrigan at (310) 478-4500

We are pleased to announce that the Dannon Company has agreed to be the Invitation Sponsor for the WOD Luncheon.

 

CCFA Greater Los Angeles/ Orange County Education Programs 2012

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We started the year off with an informative nutrition education program at Cedars-Sinai Medical Center. Erin Feldman, RD presented information on nutrition, diets, supplements and how to maintain overall health with IBD. Over 50 people showed up and it was a great event. This program is also going to be offered in the OC in May.

We would also like to thank the following sponsors for their generosity, which make our education programs possible!

         

                    

             

 

Come Share in the Magic of Sibling Camp this Summer!

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The Painted Turtle is now accepting applications for the Sibling Session at The Painted Turtle to be held August 16-20, 2012. Sibling Camp provides an opportunity to share good times, and peer support with other children who are the sibling of a camper with a medical condition. Sibling campers will enjoy boating and fishing, arts and crafts, woodshop, music, and much more! Download flyer.

 

CCFA Youth Events Are a Blast!

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Youth-Event_LA-Jan-2012.JPG     Youth-Event_OC-Jan-2012.jpg

From jumping off the walls at SkyHigh in Woodland Hills to a triple strike in Orange County at Irvine Lanes, the first 2012 Youth Events in the Greater Los Angeles were a success! With just under a total of 100 participants, CCFA is broadening its reach!

To learn more about either our Youth Events (ages 1-17) or our Youth Leadership Club and Next Generation (ages 17-25) contact:

Los Angeles & Santa Barbara: Amira Shaif (310) 478-4513 or ashaif@ccfa.org
Orange County: Sabrina Irsay (646) 942-3888 or sirsay@ccfa.org

 

CCFA Youth Event: Beachy BBQ Afternoon!

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When: Sunday, March 25, 2012, 2-5 p.m.

Where: Dockweiler Beach. Meet North of parking lot at Imperial Highway and Vista Del Mar (along S Marine Avenue). Look for balloons.

What: Potluck, beach games, other cool kids, and an awesome time! Parents welcome!

Bring: Please bring something yummy to share and something to sit in/on.

MUST RSVP: Let us know who’s coming with you and what you’re going to bring.

 

Transitions in IBD: Graduating to Young Adult Care - Teleconference

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New teleconference/webcast will be held on Thursday, March 15 from 8:00-9:15 p.m. Presented by Laurie Fishman, MD and Maureen Kelly, MS, RN, CPNP, this program will discuss how to successfully transition from pediatric to adult IBD care. Nurses will also be eligible to receive continuing education credit. Go to www.ccfa.org/info/webcasts for up-to-date information, and an archive of previous webcasts.

 

CCFA Online Community Interactive Features

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The CCFA Online Community offers many unique features that help patients and caregivers connect with each other and find support for managing their disease. In addition to the discussion forums and personal stories, did you know that the Community site also offers interactive learning opportunities? The IBD Knowledge Navigator allows users to narrow down their search for information on Crohn’s disease or ulcerative colitis and provides links to related articles and resources. The Expert Q&A Library allows users to submit their own questions to our panel of IBD experts and search for previously answered questions. Each month we select new questions to be answered by the panel and post them to this searchable library. Check out these interactive features today!

 


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