June 2011 eNewsletter
Chapter Director’s Note
Now that I’ve taken part in my first Take Steps walk, I feel initiated into the CCFA family. Experiencing all the enthusiasm, camaraderie, and emotion of walk day helped me understand just what an important role Take Steps plays in bringing together patients, families, friends, and the Cleveland community. With our stories of overcoming challenges, maracas, loud cheers, and rockin’ band, I’m confident to say that we were HEARD on June 18th at Wade Oval!
It was a pleasure to host CCFA President Rick Geswell and to have the opportunity to meet so many of you with whom I’ve exchanged emails and had telephone conversations. Thank you for taking the time to share your feedback about the event and CCFA Northeast Ohio programs. I’d also like to thank our Take Steps Cleveland committee members, without whom the event would not have been possible.
Take Steps Cleveland was truly a success in raising awareness of IBD in our community and securing significant financial support - $145,000. But we’re still shy of our $184,000 goal. We need your continued support today. Step up your commitment to CCFA by:
- making a personal contribution to support Take Steps Cleveland: click here
- buying tickets to our Indians Fundraiser on July 24th: click here
I look forward to sharing this experience with still more CCFA constituents at our 2nd Annual Take Steps Akron walk on October 1. We will be sending out information about the Kick Off event and the walk in Akron shortly. In the meantime, please contact Katie, our Walk Director: firstname.lastname@example.org, for help registering your team, starting a corporate team, or to discuss sponsorship opportunities for your company.
Again, thank you to everyone who supported Take Steps Cleveland by making a personal contribution, fundraising for the event, and by attending in person. We are lucky to count you as part of the CCFA family. And what a wonderful start to our summer events season!
Lesley Hoover, Chapter Director
Volunteer Spotlight - Robby Edelstein
Robby Edelstein currently serves as Co-Chair of the Golf Committee as well as an Emeritus Board Member. On the Golf Committee, he secures sponsorships, individual donations, auction items, and recruits golfers to participate in the event. As an Emeritus Board Member, Robby provides counsel on various matters and leverages his personal and professional networks to help build relationships in the community. He has been involved with the chapter since 1996, including three years as Board President.
When he’s not volunteering for CCFA, Robby spends time with his Wife Stacy, their two daughters, and two dogs. He is a sole practitioner attorney in Cleveland, with a practice in commercial collections, landlord/tenant law and corporate matters. We would like to thank Robby for his long-time support and leadership of CCFA.
Team Challenge Participant Katie Gallets Raises $3,000 Eight Weeks Before Vegas Kick-Off
“I am inspired to be part of Team Challenge because of my sister, Megan. After her diagnosis of ulcerative colitis, Megan struggled through and bravely faced the challenges of the disease. Today, Megan is a healthy, vibrant, and active young adult. Without knowing her, you would not even be aware of all she has gone through. Megan's journey makes me want to be a better person. If she is able to overcome the challenges of ulcerative colitis, the least I can do is be part of Team Challenge, raise money for all who suffer, and most importantly represent Megan.”
Please visit my website to read more about Megan’s story and my Team Challenge efforts.
Understanding IBD: Free Program in Akron this Summer
We are pleased to present Understanding Inflammatory Bowel Disease: What Every Patient Needs to Know on Monday, August 29, 2011 in Akron. The program will feature gastroenterologist Costas Kefalas, MD, FACG, FASGE, AGAF, of Akron Digestive Disease Consultants. This program is designed for patients, family members, loved ones, and others who have an interest in IBD. Summa Health Systems is generously providing space for the program. Registration will begin at 6:30 PM and the presentation will begin at 7:00 PM. The program is free and open to the public.
Please RSVP by clicking on the following link: click here. If you are unable to register online or have questions, please contact the NE Ohio Chapter office at 216-524-7700. We hope to see you there!
Best wishes to our Northeast Ohio Campers!
On July 10, we officially kick off Camp Oasis in Fenton MI. Camp exclusively serves kids with IBD from Michigan, Indiana, Ohio and Kentucky. Our chapter is sending 19 kids to camp this year, which is a 150% increase over 2010! We are very excited for this camp season. Plese join us in wishing our campers a safe journey and a fun-filled week. We will provide a recap in our August newsletter - no doubt there will be great stories to share. Thanks for your continued support of this incredible camp!
Mentors Needed Upcoming Live Event!
In the next several months, the Northeast Ohio Chapter will launch Power of Two, a mentoring program being rolled out by CCFA chapters across the country. This program offers one-on-one support to patients with Crohn's disease or ulcerative colitis. CCFA frequently receives calls from patients who simply need to talk with someone who has been through a similar experience. Power of Two links the caller in a safe, confidential manner with a peer mentor who will provide nonmedical support.
Mentors will be screened and trained prior to inclusion. Once trained, if a patient calls seeking one-on-one support, we will seek out the closest mentor "match" and connect both parties via email or phone. The mentor and caller may then seek a mutual time to talk by phone.
If you are interested in volunteering with this worthwhile program, please contact Becky Johnson Rescola at email@example.com or 917-325-3944.
CCFA Day at the Ball Park with the Indians
It was great to see everybody at Take Steps Cleveland on June 18th. The weather stayed sunny, the band rocked and the cotton candy was in high demand. Despite our best efforts and a great walk day, currently, we are at $145,000 (committed) toward our goal of $184,000. This means that we are only $22% away from a record-breaking walk.
The good news is we can continue to fundraise for Take Steps Cleveland through August 31st with the following:
- Indians' game fundraiser, buy tickets here
- Restaurant benefit night, TBD (check www.cctakesteps.org/cleveland2011 for details coming soon)
- Continued online fundraising by walkers and teams (that's you!) Remember Jimmy Buffet tickets are still up for grabs until July 1st.
- Additional donations/fundraising from registered walkers striving for that next incentive level
- Personal contributions from $0 walkers, $0 teams and those of you who didn't register for Take Steps Cleveland. Make a donation today.
To see your photo from Take Steps Cleveland click here and enter ccfa as the password.
Registration is open for Take Steps Akron!
Our second annual Take Steps Walk in Akron is going to be incredible. We have set a new goal of $55,000 and are already 30% there. If you weren’t able to be a fundraising team for Cleveland, join us on October 1st at Lock 3 Park and be a part of finding a cure for Crohn’s and colitis. Register today at www.cctakesteps.org/akron2011.
Good luck to Miami University’s newest Freshman!
Join us in wishing good luck to Joey Melenick as he ventures to Oxford, Ohio and begins his college career. The past six years, since his diagnosis, Joey has been an advocate for CCFA, a mentor for young children newly diagnosed with IBD and a philanthropist - raising over $50,000 to fund research for a cure. And he’s not stopping! While at college, Joey will be training for Team Challenge Vegas with a personal goal to raise another $4,000. His efforts have not gone unnoticed as he became the only Ohio recipient of the Prudential Spirit Community Award and the UCB Scholarship Program. CCFA has been lucky to have Joey and sends their best wishes as he begins his next incredible adventure.
Viva Las Vegas - 8 Weeks and Counting Til Training Begins!
Print out this poker chip and bring it with you to one of the info sessions below for a chance to win exciting prizes!
For the first time ever, Team Challenge will be run at night! When you join the Team for this half marathon, you'll see the Las Vegas Strip as it was meant to be seen, in all its glitz and glamour. As you run/walk past world-famous attractions on this flat, fast course, you'll be accompanied by cheer squads and rock bands to get you motivated and moving! Team Challenge includes16-week team training in Cleveland and an amazing event weekend in Vegas. This endurance training and fundraising program is truly a life changing experiences.
RSVP to an Info Meeting Near You:
Tuesday,8/9/11 6pm– Fitworks Rocky River - 19607 Detroit Road
Thursday, 8/11/11 6pm– Fleet Feet – Northfield - 114 E Aurora Rd # 200
Saturday, 8/13/11 9am – Second Sole – Akron - 1466 North Portage Path
Tuesday, 8/16/11 6pm – Fitworks Richmond Heights - 5174 Wilson Mills Rd.
Thursday, 8/25/11 5pm – Hard Rock Cafe - Cleveland - 230 West Huron Street
Refreshments, free trials and discounts offered at ALL meetings!
When you train with Team Challenge you will receive:
- Coaching and training as a team
- Expenses paid trip
- The opportunity to turn your fitness goals into a reality
- A connection with an honored patient so you can stay motivated
- Professional training on beautiful trails
- All the tools and help you need to raise your funds – you’ll even get your own free web page
- A t-shirt when you sign up for the challenge, plus a racing singlet for the half-marathon
- Pasta party the night before the race, so you and your friends can load up on the essential carbs
- Passes to the Team Challenge victory celebration after the race with music, fun and friends
To RSVP to one of the info sessions, learn more, or sign up, contact Carissa at firstname.lastname@example.org or (216) 524-7700 ccteamchallenge.org
24th Annual Golf Outing - SAVE THE DATE
Join us on August 15, 2011 for our annual golf outing at Chagrin Valley Country Club, co-chaired by Robert Edelstein and Phil Moshier. For the past twenty-three years, we have hosted one of the premier charitable golf tournaments in Northeast Ohio. In addition to a great round of golf, the Tournament includes a buffet dinner, incredible door prizes, and an extensive silent auction. All proceeds benefit the year round programs of Northeast Ohio CCFA: cutting edge research, educational programs, and support groups.
We are currently seeking event sponsors and in-kind donations for the silent auction. Please contact Terri: email@example.com if your company would like to sponsor the event, you have an item to donate or would like to help the committee solicit auction/raffle donations.
Register as a golfer now! click here
Thank you to our dedicated Golf Committee members: Howard Edelstein, Rob Edelstein, Rob Heiser, Steve LaDue, Ken Landis, Bruce Leff, Phil Moshier, Bill Sopko, Ron Teplitzky, and Bob Westfall.
Jason Schwab Spreading the Word at MLB Parks for CCFA
Schwab is touring all of the MLB parks to raise funds for the Northeast Ohio Chapter of the Crohn’s and Colitis Foundation of America.
“It’s been mostly by word of mouth and online on my website www.sportsroadtrip.info,” said Schwab, who moved to Indiana after his freshman year at New Philadelphia High School. “I tell people at the stadiums I’ve visited. I’ve talked to vendors, ticket takers, anyone I come in contact with. I just tell them what I’m doing.”
“I really enjoy driving and I love to travel,” said Schwab of why he has traveled from coast to coast and north of the border to the Rogers Centre in Toronto. “I love baseball and felt this was a great way to make people aware of Crohn’s disease.”
Schwab, has traveled solo during his journey: “It’s just me and my iPod,” said Schwab. “I pay for the games and for my lodging. Schwab has a lot of fun along the way, but the bottom line is that he wanted to generate funds for the foundation.
And he’s been very successful. His goal was to raise $8,000 and he has surpassed that with a little more than two weeks left in his journey.
To donate in Jason's honor, visit http://online.ccfa.org/site/PageNavigator/30in60.html