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May 2011 eNewsletter 

Chapter Director’s Note 

In the two months of my tenure here, I have learned that CCFA Northeast Ohio is many things to many people.  We are a trusted educator, a fervent supporter of cutting edge research, and a passionate advocate.  Every day we help people get the health tools, support, and information that they need.  I am continuously inspired by the conversations that I have with Board Members, volunteers, and patients whose passion and commitment to our mission are clear.

I am delighted to serve as Chapter Director of your local CCFA Chapter and this is truly an exciting time.  My commitment is to strengthening relationships and visibility - with donors, volunteers, and the community at-large. 

With the arrival of spring, our core programs and events are just around the corner. 

  • Take Steps Cleveland: June 18th 
  • Take Steps Akron: October 1st 
  • Team Challenge Virginia half-marathon: June 14th
  • 24th Annual Golf Tournament: August 15th

This note is your invitation to take action - join us in expanding our base of community support.  If you have already given to CCFA Northeast Ohio through time, financial contributions, or your network of professional contacts, thank you.  Your generosity makes our community programs possible.  If you are new to us, or interested in building upon your involvement by making a personal contribution, then please visit our chapter website to make a donation:   http://www.ccfa.org/chapters/neohio  Thank you in advance for your generosity! 

I look forward to meeting more of you as Spring turns into Summer, and we have the occasion to meet at these chapter events.  In the meantime, I would love to hear from you with comments, new ideas, questions about upcoming programs, etcetera - so please don’t hesitate to contact me: (216) 524-7700 or lhoover@ccfa.org.

Best,

Lesley Hoover

Lesley Hoover, Chapter Director 

Volunteer Spotlight - Bruce Serfass

 Bruce.jpg 

Bruce Serfass in an amazing asset to the Northeast Ohio chapter. He is an integral member of the Take Steps Cleveland committee and never turns down an opportunity to assist the chapter in whatever it needs. His family not only ranked as a top fundraising team for both the Cleveland and Akron walks last year, they also volunteered at both.  Bruce will continue the tradition by face painting at the 2011 Cleveland walk. Bruce consistently goes out of his way to extend a helping hand to this chapter

Thank you to Take Steps Cleveland Committee Members

With Takes Steps Cleveland only a month away, we’d also like to thank our 2011 Committee for all their hard work:  Terri Lowe-Donovan, Jessica Giacobbe, Stephanie Baker, Jessica Conner, Kelly Augusta, Tocomba Murphy, Hallie Fisher, Jessica Conner, Ken Bloom, Ron Teplitzky, Joe Prada, Jenny Green, Missy Roberts, Allie Stieglitz, Christina Serritti and Bruce Serfass.

Donor Spotlight - Larry and Sally Sears

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 "We are pleased to contribute to the Northeast Ohio CCFA research initiative in its efforts to find a cure for IBD.   We have great confidence in and wish to support the local research community!"  We want to extend our sincerest thanks to Sally and Larry for their loyal support. 

 

National Scientific Advisory Council to Announce New Research Funding

CCFA has a long history of allocating significant research dollars to Northeast Ohio.  This funding has strengthened Northeast Ohio’s position as one of the foremost research areas for Crohn’s and colitis.  Generous donors to the Northeast Ohio Research Initiative provide targeted funding to support local research projects.  Please stay tuned for details on local and regional projects that receive funding for this year.

 

Upcoming Live Event! Pediatric Crohn’s Webcast/Teleconference, May 19, 2011 8:00 pm ET 

CCFA will be hosting an educational teleconference/webcast, Pediatric Crohn’s: Finding the Right Path to Care, on May 19 from 8pm-9:15pm ET.  This is intended to enlighten families and healthcare professionals on the unique medical and psychosocial needs of children with Crohn’s disease (CD).  It will encompass an overview of CD, medical management of pediatric disease, nutritional considerations in remission and in flares, and growth and developmental factors.  The webcast will be available as an archive after the live broadcast.

Register today at www.ccfa.org/webcasts/pediatriccd

 1104enews illbd2 

I’ll Be Determined – A New resource

CCFA recently launched a new interactive patient website (www.ibdetermined.org) designed to help patients take a closer look at how they are living with IBD.  Users can navigate through four interactive journeys – Treatment, Diet, Complications, and Quality of Life – and receive a virtual badge after successfully completing each one.  The site also features a section called THE WALL for participants to submit personal declarations and share their thoughts. We hope you will visit the site!

 

Take Steps

Take Steps - It's Crunch Time!

Take Steps Cleveland is only a month away and we have a lot of work to do in order to reach our goal of $184,000.  Let’s get excited to make 2011 a record-breaking year!  If you haven’t signed up yet just click here (www.cctakesteps.org/cleveland2011) to get started. Take Steps is our signature event and in our new location at Wade Oval, it’s going to prove to be the best yet!  We’ll have clowns, face painters, a live band, cornhole, a bounce house, contests and great giveaways.  Do not miss this event!

We’re also looking for volunteers to help work the tents and help with registration and accounting. Please let Katie know if you are interested in volunteering at ktricarichi@ccfa.org or 216-524-7700.

Beginning in 2011, it is CCFA's national policy that only registered walkers on fundraising teams or registered as fundraising individuals will receive wristbands on walk day. The wristband gives the participant complete access to all event day activities including food and refreshments. 

Children Cycle For Crohn's and Colitis
May 22, 2011 at Legacy Village in Lyndhurst, OH
Registration begins at
8:00 a.m.
Bike-a-thon begins at
9:00 a.m.


Join this children's bike-a-thon
to raise money for the CCFA and find a cure for Crohn's disease and ulcerative colitis. There will be live entertainment, food, raffles, prizes and more! It's FREE to ride but participants are encouraged to seek donations from their friends and family to support their involvement. All kids get a FREE t-shirt too! This event was created by Maddy Wilbur whose little brother Daniel  was diagnosed with Crohn's disease at only four years old. She has watched him go through a lot of testing, have many blood draws and watched him take a lot of medicine every day. Help Maddy find a cure for her brother.  For more information visit http://online.ccfa.org/goto/bike-a-thon

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Team Challenge : Rock the Strip at Night at the Vegas Rock 'N' Roll Marathon - Enroll today

For the first time ever, Team Challenge Vegas will be run at night! When you join the Team for this half marathon, you'll see the Las Vegas Strip as it was meant to be seen, in all its glitz and glamour. As you run or walk past world-famous attractions on this flat, fast course, you'll be accompanied by cheer squads and rock bands to get you motivated and moving!  Team Challenge includes16-week team training in Cleveland and an amazing event weekend in Vegas!  This endurance training and fundraising program is truly a life changing experiences.
 

RSVP to an Info Meeting Near You:

Tues.,8/9/11  6pm– Fitworks Rocky River - 19607 Detroit Road

Thurs., 8/11/11  6pm– Fleet Feet – Northfield - 114 E Aurora Rd # 200

Sat., 8/13/11  9am – Second Sole – Akron - 1466 North Portage Path

Tues., 8/16/11  6pm – Fitworks Richmond Heights - 5174 Wilson Mills Rd.

Thurs., 8/25/11  5pm – Hard Rock Cafe - 230 West Huron Street, Cleveland

Refreshments, free trials and discounts offered at ALL meetings!

When you train with Team Challenge you will receive:

  • The most rewarding experience of your lifetime!
  • Coaching and training as a team
  • Expenses paid trip
  • The opportunity to turn your fitness goals into a reality
  • A connection with an honored patient so you know who you're doing it all for
  • Professional training as a group on the weekends on beautiful trails 
  • All the tools and help you need to raise your funds – you’ll even get your own free web page for fundraising support
  • A t-shirt when you sign up for the challenge, plus a racing singlet for the half-marathon
  • Pasta party the night before the race, so you and your friends can load up on the essential carbs
  • Passes to the Team Challenge victory celebration after the race with music, fun and friends

To RSVP, or schedule a one-on-one meeting, or sign up for a race with Team Challenge, contact Carissa at cbowlin@ccfa.org or (216) 524-7700 ccteamchallenge.org

 Team Challenge Cycle.gif

Team Challenge - Cycle

Join Team Challenge Cycle, the newest addition to our endurance training program.  We'll provide you with all the training and fundraising tools you'll need to cross the finish line at Centurion Canada, a 50 mile cycling event on September 18. Registration opens in May, don't miss your chance to be a part of the team!

Cyclists receive professional coaching from Melissa Spooner, three-time Ironman champion. “Coach Mel” also has a Bachelor of Science in Nutrition and years of coaching experience to make sure each athlete, whether novice or experienced, is ready for race day in Ontario.

Learn More:

http://www.ccteamchallenge.org/Cycle_Training_Program.htm   

Contact: Marisa Sarringhaus, msarringhaus@ccfa.org, 646-750-7119  

Welcome, Emeritus Board Members

It is with great pleasure that we welcome Robert Edelstein, Howard Edelstein, and Bruce Hartzmark as Emeritus Board Members.  We are grateful for their distinguished service to our chapter and look forward to their ongoing involvement. 

Golf 

Join us for a Round of Golf! 

Join us on August 15, 2011 for our annual golf outing at Chagrin Valley Country Club to help raise funds for CCFA.  Interested golfers should call (216) 524-7700 for more details.

 baseball

30 in 60: Baseball Road Trip to Raise Funds and Awareness

Twenty-two year old Jason Schwab began his tour of Major League Baseball stadiums Thursday, May 12th to raise awareness of Crohn’s and colitis and to raise funds for our chapter’s community programs.  Jason was diagnosed with Chrohn’s disease at the age of 15.  He calls his road trip “30 in 60”, with the aim of attending at least one Major League Baseball game in every stadium, with the entire trip taking 60 days.  Jason has already raised over $5,000!  Additional information is available at:  http://www.ccfa.org/chapters/neohio  

 

Northeast Ohio Linkedin Group

Join the CCFA Northeast Ohio Linkedin Group to keep in touch and help our chapter expand our network of contacts in the community.  Join the group at: http://www.linkedin.com/groups/CCFA-Northeast-Ohio-3889863?trk=myg_ugrp_ovr

 

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Need help?

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Contact our Information Resource Center: 888.694.8872 or www.ccfa.org. For tips, sharing, and support from other people with Crohn's disease or ulcerative colitis, join our free CCFA Community site.


Our mission

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To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.


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