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CCFA Horizons

E-newsletter of the Greater Washington, DC/Virginia Chapter

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With spring finally upon us, CCFA is busy expanding our efforts to make better treatments for Crohn's and ulcerative colitis a reality.

We are excited that within the first year, The CCFA Genetics Initiative had already discovered at least two genetic pathways that are targetable by existing chemicals/drugs - one of which has already proven to be safe in humans. Launched in 2012, The Initiative is a collaboration of the brightest minds in genetics research. Working together, this team of world-renowned researchers is currently leading the way in breakthrough genetic science related to IBD.

 Whether you are participating in one of our special events, Take Steps walks or a Team Challenge endurance event, we thank you for your support. Every donation helps advance this type of cutting edge research, as well as supports advocacy on Capitol Hill and helps patients manage their disease.


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Nutrition & IBD: Choices for Adults & Kids
Date: Wednesday, April 9, 2014
Time: 6:30 PM - 8:30 PM

The CHKD Health Center at Oakbrooke
Location: 500 Discovery Drive
Chesapeake, VA 23320


Register Again

Aware for All: Understanding the Basics of Clinical Trials
Date: Wednesday, May 14, 2014
Time: 6:30 PM to 8:30 PM

Location: Holy Cross Hospital
Professional & Community Education Center
1500 Forest Glen Road
Silver Spring, MD 20910 

Register Again

Getting to Know Crohn’s & Colitis
Come join us for coffee & dessert while learning about IBD!
Date:
Wednesday, May 21, 2014

Time: 7:30 PM – 9:30 PM

Location: Temple Beth Ami
14330 Travilah Road
Rockville, MD 20850
 

Register Again



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April Fundraising Tip!
   Don't be a fool, host a fundraising event!
Game nights, office parties and dress down days are ways to involve your community and make  fundraising fun and easy!

Richmond Take Steps
 Sunday, April 27, 2014
 North Shore Commons, Innsbrook


Register Again

Thank you to our Sponsors!

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National Capital Area Take Steps

Saturday, June 21, 2014
Washington Monument Grounds

Register Again

Thank you to our Sponsors!

New Capital Digestive Care

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National Capiial Area Kickoff

There is still time to join us this Sunday, April 6th for the National Capital Area Take Steps Kickoff Party at Comet Ping Pong. SPACE IS LIMITED!

We will be sharing ideas and success stories and providing you
with everything you need to reach your goal!


Time: 2:00 PM - 4:00 PM
Location: Comet Ping Pong
5037 Connecticut Avenue, NW
Washington, DC 20008

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Team Challenge is still open to participants interested in running or walking the Napa to Sonoma Wine Country Half Marathon and the Jamestown Half Marathon. To learn more about these programs, please contact Karen Byer at 301-287-8494 or kbyer@ccfa.org.

Team Challenge is fundraising!

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Fundraiser Night at Flight: Trampoline Park for Team Challenge TRI

Location: 7200 Fullerton Road, Springfield, VA 22150
Date: Wednesday. April 9
Time: 6 PM - 9 PM

RSVP to Kim Teter at: kteter@ccfa.org or 410-227-5145



Join us for the Inaugural Putt an End to Crohn’s & Colitis Golf Classic

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Camp 2

A co-ed residential camp for kids with Crohn’s disease and ulcerative colitis.

Our 2014 session will be held at Camp Tall Timbers
in High View, WV from June 17th - 21st.

Online applications are HERE!

NOTE: Application Deadline is April 14th, 2014
Those who have registered, please make sure that you have
completed ALL parts of your application
.

Questions? Please contact Chris Joyce:
(412) 823-8272 x2 / cjoyce@ccfa.org


More information




Seeking Support Group Facilitators:

We are currently seeking support group facilitators for Richmond, VA; Roanoke, VA; Hampton Roads, VA; Charlottesville, VA; and Winchester, VA.  Below includes the roles and responsibilities of a support group leader. 

  • Establish frequency and time of meetings; assist in selecting the meeting site, advertising, recruiting and support group reminders.
  • At the request of group members, invite guest speakers on topics of interest.  Ensure all guest speakers are approved by the Education & Support Manager.
  • For each meeting, keep track of attendance and provide this information on the next business day to the Education and Support Manager.
  • Possess effective communication skills to encourage, impact and explain often difficult topics in an approachable way.
  • Other duties as assigned.







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