Exciting new things are happening this summer at the Crohn's & Colitis Foundation! We have important research updates, educational information, and a fresh schedule of events. Read below to find out more.
Nutrition & IBD Webcast Review: Food for Thought
One of the most popular topics among people with IBD is nutrition. Patients often ask, "What should I be eating?" Holidays and gatherings can be extra difficult as they may be stressful and lead to poor food choices. On April 10th, the CCFA aired a live webcast called “Food for Thought-Nutrition & IBD” presented by Dr. Millie Long, Dr. Joel Rosh and Lisa Cimperman, Clinical Dietician.
This webcast/teleconference provided up-to-date information on the complex relationship between nutrition and IBD management. It also revealed interesting information about many of the “fad” diets patients try to manage their symptoms. The information in the presentation will empower patients and caregivers to make healthy choices, and to ensure adequate nutrition and wellness throughout the year. If you missed the original webcast you can watch it any time by going to http://engage.vevent.com/rt/ccfa~041013.
Sunday, July 14 through Friday, July 19, 2013
Camp Will-A-Way in Winder, GA
Dealing with inflammatory bowel disease (IBD) as a child is challenging. That is why the Crohn's & Colitis Foundation of America (CCFA) proudly established Camp Oasis over a decade ago. This co-ed residential camp program enriches the lives of children with Crohn's disease and ulcerative colitis by providing them with a safe and supportive camp community.
A Life Changing Experience
All of the campers (and many of the counselors) at Camp Oasis are living with IBD. This creates a supportive community that allows campers to:
- Understand that they are not alone;
- Try all sorts of new sports and activities;
- Create friendships with people who truly understand them;
- Gain confidence and independence;
- Put aside their troubles, and just be a kid.
Outstanding Medical Care
Our volunteer physicians, nurses, and other health care professionals are available for 24-hour care, and work to ensure campers follow a regimen prescribed by their doctors back home.
A Quality Program
Camp Oasis was built upon the highest standards of care, and offers activities that appeal to every taste: visual and performing arts, land and water sports, high ropes and other outdoor adventures, leadership development (for our older participants). Our schedule also allows children plenty of time to relax, get to know one another, and share the best medicine of all—laughter!
Our roster for the 2013 camp session is currently full. Please visit our website after camp to apply for the 2014 session at: http://www.ccfa.org/get-involved/camp-oasis/find-a-camp. Please contact Mary Ball Esna-Ashari at firstname.lastname@example.org or 404-982-0616 for more information.
Pediatric, Adolescent and Parent Support Group
The Pediatric, Adolescent and Parent Support Group held their first meeting on April 23rd and it was a huge success! There were 11 families in attendance at Scottish Rite Children’s Hospital. The youngest children (ages 3-7) spent an hour doing fun craft activities and talking about how Crohn’s and colitis affect them as patients and their siblings. The older children (ages 11-16) also participated in some activities and lively group discussion. The parents were able to congregate and share experiences they have had raising children with IBD and their siblings. It was a very fun evening and the
beginning of a fantastic new community!
The next formal meeting will be held on Tuesday, August 27th from 6:00-8:00 PM at Scottish Rite Children’s Hospital. All details will be posted on the Events tab at www.ccfa.org/chapters/georgia. Please contact Mary Ball Esna-Ashari for additional information about this support group at email@example.com or 404-982-0616.
Challenges in IBD Research
Since our inception in 1967, the Crohn’s & Colitis Foundation has invested over $180 million in research; each year this is our primary goal for how the funds that we raise are used. In addition, beginning in 1990, the Foundation has brought together groups of physicians and researchers from the academic setting and private practices, to discuss developing research studies and present ideas for new studies. This conference, held every four to five years, not only updates the Foundation’s strategic research plan, published under the name “Challenges in IBD”, it will help to bring important discoveries from the basic (laboratory) environment and clinical (patient care) area directly to the patient’s bedside.
These research studies and results prove that your funds are working, literally right before your eyes, in developing new treatments, better tests for faster diagnosis, and all leading toward completely individualized medicine and someday, a cure! To see the 2013—2017 Challenges in IBD document, and a list of current research studies for adults as well as children, please visit: http://www.ccfa.org/research/challenges-in-ibd-research/.
New Staff Introduction
Jeremiah Lawson, Endurance Manager
comes to CCFA from Aid Atlanta, where he worked as the Coordinator for
AIDS Walk Atlanta & 5K Run. He served as an integral part of the
staff for the past three years. He has worked in the field and also been
a part of the team that plans, implements and executes this large,
highly successful campaign. Jeremiah has also volunteered his time as
Director of Volunteers for Joining Hearts, a non-profit organization
which raises funds to support the housing needs of those living with
HIV/AIDS. We are confident that Jeremiah will take Team Georgia to new
Shannon Primm, Walk Manager
In her own words, "I
am the new Take Steps Walk Manager for the Georgia Chapter and am humbled to
be joining such a wonderful group! Having planned walks since
transplanting to Atlanta, I could not see myself doing anything else. I
am truly excited to now call CCFA "home" and have received
an overwhelming welcome. Specifically with CCFA, I draw upon my
passion and my personal story. My mother was diagnosed with ulcerative
colitis in 1959 - eight years before CCFA was in existence! Over the years, I
have been a part of her battles and have seen not only the struggles
but the advancements- due in LARGE part to CCFA!"
Elise Warski, Team Challenge Coordinator
arrived at CCFA from a background in healthcare, spending a few years
working for WellStar in Marietta, Ga. She is originally from Chicago,
and graduated from University of Iowa, and subsequently moved to Atlanta
with her husband for work. Elise has an incredible passion for the work
CCFA does, because she endures a life with Crohn’s disease herself!
Through all of her difficult times with the disease,
she maintains an absolutely amazing attitude, and is always willing to
do anything within her power to help other patients, CCFA’s Team
Challenge participants, and any other constituents.
Ever dream of playing on the field of an NFL stadium? Here’s your chance! This summer, 16 teams will compete in a touch football tournament, on the field, under the lights at the Georgia Dome – home of the Atlanta Falcons! All proceeds benefit the Crohn’s and Colitis Foundation of America. The tournament will feature teams of 7-15 co-ed players, playing double elimination, seven-on-seven games. All games will be 25 minutes in length, and will be officiated by professional referees. In addition to the football tournament, players and attendees will receive free food and beverage. Throughout the evening, stadium personnel will conduct behind-the-scenes tours of the Dome.
When: August 22nd, 2013 at the Georgia Dome
Cost: Registration is $3,500 per team, can be donated or teams can fund raise. Sponsorship and sponsorship benefits available.
Contact: Krista Heckler, Development Manager at 404.982.0616 or firstname.lastname@example.org
We've just wrapped up our Atlanta walk, and now move to Macon and Savannah! Join us by registering for these fall walks at:
www.cctakesteps.org/macon or www.cctakesteps.org/savannah
Team Challenge has several great summer and fall events for you, whether you prefer Nashville or Vegas! Please contact Endurance Manager, Jeremiah Lawson at email@example.com or 404-982-0616 to sign up to run one of these exciting destination races!