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We're in full gear

The start of summer kicks off a season full of events and programs and we want you to join us. From CCFA's signature programs, Take Steps and Team Challenge, to the Illinois Chapter's Annual Golf Tournament and "Recipe for a Cure" cooking class...there's sure to be an event for everyone to get involved!

Continue reading to find out how you can be a part of our efforts to find cures and to stay updated in the latest CCFA news.

Take Steps Kicks Off in a Month

The Illinois walks start in a month and we'd like to take a moment to acknowledge all of our 2013 Take Steps sponsors. Thank you for your support!

     

 

  

It's not too late to join a walk near you. Recruit your families, friends and co-workers to join you as we raise mission critical funds to help find cures for inflammatory bowel diseases. Register today!

Honorees Announced for Gala

Each year the Illinois Chapter of CCFA chooses two honorees for its annual “A Little Night Music” Gala. This year’s Distinguished Physician will be the late Dr. Donald Liu and the Inspirational Youth will be Chloe Kennebeck. The gala which raises funds for CCFA's ProKiids will be held on Saturday, October 27, 2013 at the Trump International Hotel & Tower Chicago.


Dr. Donald Liu  and  Chloe Kennebeck

Donald Liu, MD, PhD, section chief of pediatric surgery and surgeon-in-chief at the University of Chicago Medicine's Comer Children's Hospital, drowned Sunday, Aug. 5, 2012 after attempting to rescue two children who were caught in a strong current in Lake Michigan near the town of Lakeside, Mich. He was 50 years old.  The actions he took that day were typical of the remarkable, life-saving energy he displayed every day of his life.  Liu touched many lives including many children requiring surgery because of IBD.  He was as a master clinician and researcher who always put his patients and their families first.

Chloe Kennebeck was diagnosed with ulcerative colitis in 2009. She missed more than 15 weeks of school and took up to 18 pills a day. Today her diagnosis has is undetermined IBD with possible Crohn’s disease. Through it all Chloe has managed to stay positive and continue her fight against IBD to make sure that children like her do not have to go through what she does on a daily basis. She participated in the Ohio Take Steps walk and is currently a member of Team Challenge Illinois. She participated in her first Team Challenge half marathon as the youngest participant. She’ll be running in her second half marathon with the team this year. Chloe serves as a great role model for other children with IBD and as a reminder that anyone can make a difference.

For more information about this event contact the Illinois Chapter at illinois@ccfa.org or call (847) 827-0404.

Team Challenge Travels to "Music City"

Thirteen year old Chloe Kennebeck was determined to be a part of Team Challenge from the moment she saw a flyer in her mailbox. Strategically placing it around the house so that her mother couldn’t ignore it, her determination paid off. This summer, Chloe will complete her second Team Challenge event at the 13.1 Chicago half marathon. After crossing the finish line, she’ll keep on cheering for our team.

We are delighted to have Chloe as our honoree for the Women’s Half Marathon in Nashville this September. It’s the second year Team Challenge will bring teams to this race, but it’s the first year Team Illinois will be participating. Despite the misleading title, men are welcome too!

Join us at an information meeting to see what it’s all about.

Annual Symposium

On April 20th CCFA held its18th Annual Education Symposium. Over 500 individuals attended the program between the professional and patient programs including 36 vendors who gave attendees information on IBD and resources and services they can use.

Overall it was an incredibly powerful learning experience for all attendees.  Special thanks to Dr. David Rubin who served as Course Director for the program again this year.  He assembled another incredible committee that created our program.  The following individuals served as our committee:

Dr. David Rubin - Course Director
Dr. Russell Cohen - Chair Professional Program
Dr. Eugene Yen - Co-Chair Professional Program
Michele Rubin, RN - Chair Nurses Program
Mary Ayers, RN - Co-Chair Nurses Program
Dr. Garth Swanson - Chair Patient and Family Program
Dr. Andelka LoSavio - Co-Chair Patient and Family Program
Dr. Jennifer Strople - Chair Parents and Kids Workshop
Dr. Stacy Kahn - Co-Chair Parents and Kids Workshop
Dr. Rockford Yapp - Chair Recruitment Committee
Margie Levinson - Co-Chair Recruitment Committee
Lisa Bain - Co-Chair Recruitment Committee

Special thanks to the following companies that provided education grants to fund our programs: AbbVie, Salix, Warner Chilcott, UCB, Lifetract Foundation and Takeda.

Please check our website for future education programs coming up.  Below is a short list of upcoming programs:

  • July 10th 7:00 pm at Sherman Hospital in Elgin, IL “Understanding Inflammatory Bowel Disease”
  • November 5th 7:00 pm at Good Samaritan Hospital in Downers Grove, IL “Decision Making”
  • October (location and time TBD) "Clinical Trials"
  • November (location and time TBD) "Understanding Inflammatory Bowel Disease"

Summer is almost here!

Sign up for a fun filled week at Camp Oasis.  2nd graders all the way through seniors in high school diagnosed with IBD can apply for camp at www.ccfa.org/camps 

Nearly 80 campers will attend this year from Illinois and Wisconsin.  Camp takes place at Camp Young Judaea in Waupaca, WI from August 11th through August 16th.  We are especially looking for newly diagnosed kids that have never attended camp to register so that they can experience this incredible opportunity.

Please register before June 1st. There is a $250 registration fee although we have scholarships available to those in need.  To learn more about his experience contact Rebecca Wagner at (847) 827-0404. 

Donate to Camp Oasis! If you would like to help support our camp program by making a donation to "CCFA - Camp Oasis, 2200 E. Devon Avenue, Suite 351, Des Plaines, IL 60018".


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Contact our Information Resource Center: 888.694.8872 or www.ccfa.org. For tips, sharing, and support from other people with Crohn's disease or ulcerative colitis, join our free CCFA Community site.


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To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.


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