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News to Digest, April 2013

IN THIS ISSUE:
  • Ask the Experts Wrap Up
  • Education Program in Canton this Summer
  • Take Steps Cleveland only Eight Weeks Away
  • Team Challenge goes to Nashville
  • 26th Annual Golf Tournament - Save the Date
  • Call for Volunteers
 

Ask the Experts Wrap Up

 patient panel

On March 16th, we hosted our annual Ask the Experts patient education program in Independence. The program featured speakers from the Cleveland Clinic, University Hospitals/Case Medical Center, and MetroHealth. All keynote speakers shared clinical expertise in treating IBD and covered topics of interest to IBD patients and caregivers, with ample time to engage in audience Q&A. The program also featured a patient panel of three individuals who spoke very eloquently about coping with IBD and also spent much time providing honest, thoughtful answers to questions from the audience.

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We had over 150 attendees at the program - our largest Ask the Experts program ever! Thanks to all who attended. Special thanks to our speakers, including Drs. JP Achkar, Jeff Katz, Jeremy Lipman, and Yinghong Wang as well as Colin Harris, Tocombamaria Murphy, and Sarah Weiss; to our Chapter Medical Advisory Committee for planning the program; and finally, to our sponsors, including the Cleveland Clinic, University Hospitals, AbbVie, Salix, and Santarus. 

Upcoming Education Program in Canton 

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This summer we are coming to Canton to host Treatment Approaches in IBD: Options to Consider.  Learn more about the risks and benefits of medication, surgery, and integrative treatments in IBD; the impact of treatment adherence on disease management and quality of life; and talking with your health care team about your treatment. 

Visit our website www.ccfa.org/chapters/neohio.  More details coming soon!

 

Need Someone to Talk to About Crohn's or Colitis? 

power of 2
 

Power of Two is a Crohn’s & Colitis Foundation of America support program that connects people facing challenges brought on by Crohn's disease and ulcerative colitis. Individuals seeking help are matched with a peer mentor who has experienced similar medical and personal concerns. Power of Two peer mentors are trained to support participants through phone, email, or video chat exchanges. 

The program is open to people with Crohn’s or colitis and those with children, family members, or other loved ones with these diseases. Anyone over the age of 10 can apply to be a mentor to provide insights into living with Crohn’s and colitis. (Individuals under the age of 18 will need parental/guardian consent.)

Whether you are seeking support or are willing to help others as a peer mentor, please contact Terri Donovan 216-524-7700, ext.2 or tlowedonovan@ccfa.org to learn more about Power of Two!

 

Take Steps Cleveland is EIGHT Weeks Away!

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With eight weeks until Take Steps Cleveland now is the perfect time to register and start your fundraising for Take Steps Cleveland 2013!  Many teams are already in full fundraising mode and in heavy pursuit of helping us meet our Goal of $156,000- But we are going to need everyone’s help to get there! Register for TAKE STEPS CLEVELAND 2013 on Sunday June 23rd at Voinovich Park and be a part of finding the cure!

A very special thank you to all our participants and Team Captains for their fundraising efforts – we couldn’t do it without you. 

Here is a special Congratulation’s to the top 5 fundraising Teams so far!

  • In 5th Place Team, We Got the Guts to Walk
  • In 4th Place Team, Ethan's Troup
  • In 3rd Place Team, Kelley's Heroes
  • In 2nd Place Team, Walking For The Runs
  • AND with over $3,000 raised so far the NUMBER ONE TEAM is The Bowel Buddies 

BANNER DECORATING CONTEST!!!

Each team that raises a $1000 or more will earn entry into our Take Steps Cleveland Banner Decorating Contest! There is only ONE rule: you must use at least a portion of the provided banner in your team banner---see below for an example.

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Get creative because your banner will be judged at the walk- You could add lights, streamers, pictures of the person/people you are walking for—the opportunities are endless!

You can do whatever you like to show your team spirit!
(participation is optional but oh so fun!)

Banner 1 

 

Be a part of finding a cure. Register today: www.cctakesteps.org/cleveland 

 

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Mark your calendar

Mark your Calendar for TAKE STEPS AKRON 2013, Saturday, October 19th.
www.cctakesteps.org/akron  

Team Challenge

 

TC April 

26th Annual Golf Tournament - Save the Date             

Golf

Monday, August 19th at the beautiful Chagrin Valley Country Club www.cvcclub.com .  Stay tuned for more details and online registration. 

Call for Volunteers

CCFA is looking for some volunteers to help with set up, manning booths, children’s activities, and tear-down – all for Take Steps Cleveland.  Please email Caitlin Randall: crandall@ccfa.org if you are interested and available on June 23rd.  We are counting on your support to help make this event a success!

 

Be our Fan!  Follow Us!

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Help spread awareness while staying updated on what's happening at CCFA with social media sites.  Become a Facebook fan by selecting a link below and clicking "Like!"

You can also follow us on Twitter  and Pinterest, or join the CCFA Northeast Ohio Group on LinkedIn.

 

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Lead Chapter Partner

 

 

Need help?

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Contact our Information Resource Center: 888.694.8872 or www.ccfa.org. For tips, sharing, and support from other people with Crohn's disease or ulcerative colitis, join our free CCFA Community site.


Our mission

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To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.


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