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News to Digest, August 2012

IN THIS ISSUE:

  • New Education Programs - Akron & Beachwood
  • Akron Take Steps ONLY 36 DAYS AWAY!
  • Team Challenge Vegas Kicks Off

Chapter Director’s Note

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Last weekend, we held our annual kickoff party for Take Steps Akron. New and returning participants along with friends and family joined in the mini golf tournament at Rinky Dinks Family Fun Center in Medina.  

We celebrated the strides that we have already made in fundraising, enjoyed wooden fan decorating, played mini golf, and were inspired by remarks by Aislinn Frazier, Local Hero. Beginning with the reading of a poem written by a friend from CCFA’s Camp Oasis, Aislinn spoke about her experience as a camper over the past 6 years and the role that CCFA has played in her life. 

For those of you who weren’t able to join us at the event, here’s Aislinn’s story in her own words:

My name is Aislinn Frazier.

As some of you may know when I was about 10 I began to have scary issues with my colon. I had lots of blood every day and tons of bathroom visits. Six months later I was rushed to the ER when the levels of oxygen in my blood became extremely low. I was diagnosed with Ulcerative Colitis, a disease, I learned, that was causing my immune to system attack my colon.

I began to start taking large doses of steroids, immune suppressants, and other medicine. After about a year of trying many different meds and methods the decision was made to remove my colon. This was done in 3 stages and after the 1st surgery I began to see a big difference. All was on track for a great finish until a test a few days before the final surgery….

I won’t gross you out with all the details, but months later, cysts and other icky things were found, along with pancreatitis. 
     
               I've had many more ups and downs in the past year since my last major surgery, but
              mostly my life has been great! The main thing that helped to stay strong through all
              of this was knowing that God was watching over me and that I have parents and family
              who are supportive, and friends who are there for me no matter what!

I am currently a student at Springfield High School and going into the 10th grade. I enjoy going to football games, swimming, and riding my bike through the toe paths. When I graduate high school I plan to go to college and become a nurse practitioner -just like my Mom.                                                                                                   

The reason that CCFA is so important to me is because when kids are going through something this traumatic it’s a big help to know that there are tons of people out there who care. And that they truly want to find a cure for these diseases.

I’m excited to lead off Take Steps Akron this year and to share my story.”

NOT REGISTERED YET?
There’s still time! Contact Caitlin at crandall@ccfa.org to start a team and learn how to spread the word and find the F-U-N in fundraising.

With just 36 days until the big celebration– Take Steps Akron at Lock 3 Park, things are kicking into high gear! We are recruiting friends & family and corporate teams, finalizing corporate sponsors, and ordering those iconic event t-shirts.  Everyone is welcome!  Take Steps Akron is not only a lot of fun, but also an opportunity to raise funds for a cure and to raise awareness about digestive diseases. Did you know that Take Steps is CCFA's largest fundraising event? It wouldn’t be possible without the hundreds of volunteers and participants who join us each year.   

Lesley Hoover

Lesley Hoover, Chapter Director

 

Volunteer Spotlight:  Rachael Garson

 

Rachael

This summer we were very fortunate to have Rachael Garson work with us as an intern in the Northeast Ohio chapter office.  Rachael came to us through the Summer Internship Program at the Cleveland Hillel Foundation.  While working at CCFA, Rachael compiled and distributed patient packets and other education materials to over 36 GIs in the Arkon area.  She also designed posters and other materials that were used to promote our fundraising events and education programs.  Rachael is a sophomore at Ohio State University where she is majoring in finance with a focus in pre-medicine. In her free time she likes to bake, play with her dogs, and volunteer.  Thank you Rachael for all of your hard work this summer!

 

FREE Educational Programs for Patients, Families & Caregivers

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Treatment Approaches in IBD:  Options to Consider

This is FREE informational presentation and interactive question-and-answer session that will help you sort through treatment options for inflammatory bowel diseases (IBD). Learn more about:  risks and benefits of medication, surgery, and integrative treatments in IBD;  impact of treatment adherence on disease management and quality of life; and talking with your health care team about your treatment plan.

September 4, 2012 at 7:00 pm (registration begins at 6:30 PM)

Featuring:
William Shaheen, MD
Gastroenterologist , Akron Digestive Disease Consultants, Inc.

 Summa Health System, Akron City Hospital, Professional Center South

Basement Auditorium, 55 Arch St, Basement Level

Akron OH 44304 

Parking is available in the Parking Deck that is attached to the Professional Center South, 55 Arch street.

The entrance is off of Upson Street.

Register Today!

Online: Akron Treatments Program

Email: neohio@ccfa.org

Phone: 216.524.7700

  

Nutrition  

Nutrition & IBD: Choices for Adults and Kids  

Join the Northeast Ohio CCFA Chapter as Aaron Brzezinski, MD, Gastroenterologist at the Cleveland Clinic and Lisa Cimperman, MS, RD, LD, Clinical Dietitian at University Hospitals Case Medical Center present Nutrition & IBD: Choices for Adults and Kids.

October 9, 2012 at 7 PM (registration begins at 6:30 PM)

Rosenberg Conference Suite, Ahuja Medical Center, University Hospitals

3999 Richmond Rd, Beachwood OH

Click HERE to reserve your seat!

Program topics include:

  • Role of nutrition – adult and pediatric focus
  • Overview of diets used by IBD patients
  • Eating well with IBD – diet, nutrition, supplements
  • Tools and nutritional resources
  • Question-and-answer session

The program is free and open to the public; however, registration is required. Light refreshments will be provided. For more information, contact the Northeast Ohio office at 216.524.7700.

 

Paladar Benefit Dinner

 Paladar

Looking for some CCFA fun? Come to Paladar Latin Kitchen & Rum Bar for a CCFA benefit dinner! 

Wednesday, September 5th for Lunch & Dinner!

Eaton: Chagrin Boulevard

28601 Chagrin Blvd., Woodmere, Ohio 44122 

Paladar will generously donate 20% of your Paladar check all day on Wednesday September 5th  to CCFA! All you need to do is click here to download this FLYER and bring it with you!!

  

Take Steps Akron is Only Five Weeks Away!

Take Steps Logo 


Teams are in full fundraising mode and we are in pursuit of meeting our fundraising goal of $60,000.  If you weren’t able to be a fundraising team for Cleveland or live in the Akron area, please join us on October 6th at Lock 3 Park for the Third Annual Take Steps Akron Walk

A very special thank you to all our participants and Team Captains for their fundraising efforts – we couldn’t do it without you.  Here is a special Congratulations to the top 3 fundraising Teams so far!

  1. Bridgestone
  2. Jonny's Team
  3. Fanny's Friends 

BANNER DECORATING CONTEST!!!

Each team that raises more than $500 will earn entry into our Take Steps Akron Banner Decorating Contest!  There is only ONE rule: you must use at least a portion of the provided banner in your team banner---see below for an example.

TS banner

Get creative because your banner will be judged at the walk-You could add lights, streamers, pictures of the person/people you are walking for—the opportunities are endless!

You can do whatever you like to show your team spirit!
(participation is optional but oh so fun!) 

Be a part of finding a cure.  Register today for Take Steps Akron at www.cctakesteps.org/akron

CCFA is looking for a few good volunteers to help with set up, manning booths, children’s activities, and tear-down – all for Take Steps Akron.  Please email Caitlin Randall: crandall@ccfa.org if you are interested and available on October 6.  We are counting on your support. 

 

Team Challenge - Las Vegas Rock'n'Roll Half Marathon

team challenge logo 

TC First Training

The Team Challenge Las Vegas season is underway and participants have started their trainings. It is not too late to get involved if you are interested! We will be wrapping up registration over the next two weeks and would love to have you on the team. If you are interested in our 14 week endurance training and fundraising program leading up to an  all-expense paid trip to the Las Vegas Rock’n’Roll half marathon on December 2nd, please contact Lindsey Boyd at lboyd@ccfa.org as soon as possible.

If you do not want to participate this season as a walker or runner in the half marathon, our participants are always looking for great race sponsors for the season. You can donate to our Team Northeast Ohio page safely and securely online by visiting http://www.active.com/donate/nohioLV12 or you can simply send a check to our office at the following address along with this donation form:

ATTN: Lindsey Boyd
Team Challenge Northeast Ohio
4700 Rockside Road, Suite 425
Independence, OH 44131

All of your donations are tax deductible and will help our participates cross the finish line, bringing us 13.1 miles closer to a cure for Crohn’s disease and ulcerative colitis. Go Team Northeast Ohio! 

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25th Annual Golf Tournament a Success!

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Last Monday, 100+ CCFA friends joined us at the Chagrin Valley Country Club for our 25th annual event. We held this year’s event in honor of long-time supporters Bill Sopko and family. With a champagne toast and award presentation, we acknowledged the Sopko family’s tireless support of CCFA and the golf tournament.

The obvious choice for this honor, the Sopkos have demonstrated 15+ years of continued support and leadership. We also presented awards to the following loyal supporters:

  • Ken Landis & Family
  • Bruce Leff
  • Bob Westfall
  • Howard Edelstein
  • Esther Perlick & Family
  • Dr. Joseph Edelstein and Family
  • Vic Cohn
  • And last but not least Co-Chairs Robby Edelstein and Phil Moshier

The event generated a total of $90,983 (gross). We are in the process of totaling all expenses from the event to determine our net proceeds which will support CCFA Northeast Ohio’s mission-critical programs. A big thank you to William Sopko & Sons, Title Sponsor, the Cleveland Clinic, Lead Chapter Partner, ESPN Cleveland, and all sponsors, donors, and volunteers. This event would not be possible without their support.

Event photos will be available soon.  Check the CCFA web site for photos including one of Bill Sopko with Tony Rizzo, Aaron Goldhammer, and Je'Rod Cherry from ESPN Cleveland.

 

Second Annual Movie Gala October 25th: Save the Date

Rollie at Movie Gala 

Mix and mingle at this cocktail event at the historic Capitol Theatre. The evening will include red carpet photos, gourmet food stations & cocktails, raffle, and the film of your choosing at the theatre.  More details coming soon, contact Terri to learn more or join the committee email tlowedonovan@ccfa.org.

    

Call for Volunteers!

There are many opportunities to get involved with your local CCFA Chapter - from Take Steps, to our education programs, special events, or general office help - we are always looking for volunteers.  We are currently seeking volunteers the Movie Gala committee and Take Steps Akron Committee. 

BY POPULAR DEMAND .. .  we have created a volunteer interest form.  For a copy of this form, email tlowedonovan@ccfa.org and let us know how YOU would like to get involved with your local chapter!

  

Be our Fan!  Follow Us!

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Help spread awareness while staying updated on what's happening at CCFA with social media sites.  Become a Facebook fan by selecting a link below and clicking "Like!"

You can also follow us on Twitter or join the CCFA Northeast Ohio Group on LinkedIn.

 

Thank you to our valued partner: 

Cleveland Clinic DDI Logo sized small

Lead Chapter Partner

 

Need help?

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Contact our Information Resource Center: 888.694.8872 or www.ccfa.org. For tips, sharing, and support from other people with Crohn's disease or ulcerative colitis, join our free CCFA Community site.


Our mission

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To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.


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